Rare Diseases South Africa NPO 120-991

Rare Diseases South Africa NPO 120-991 Rare Diseases South Africa is a registered NPO, and Public Benefit Organization. New/Second hand items can be advertised/sold/communicated on this page.

Rare Diseases South Africa (RDSA) is a non-profit organisation advocating to ensure that people living with rare diseases and congenital disorders experience greater recognition, support, improved health service and better overall quality of life. We aim to ensure that all rare disease patients receive access to treatment and supportive care for improved quality of life. We have various onl

ine groups which can assist and benefit our patients:

Rare Diseases SA Support group:
This group aims to provide a secure, open platform where rare disease patients can ask questions/ give and gain support and generally just communicate with other rare disease patients. https://www.facebook.com/groups/326602834153888/?fref=ts

Conversations for caregivers:
This group has been created for Caregivers of rare disease patients. This group is a closed group and therefore only members can see post, which makes it an open place to share your stories. https://www.facebook.com/groups/1433357163499090/?fref=ts

Mothers of Bereaved Angels: This group is for bereaved mothers who have lost children to a rare condition. It is intended to function as a peer support group and provide moms with a safe platform to express their feelings and emotions. https://www.facebook.com/groups/262905480543465/?fref=ts

Swop Shop for Special Needs Items:
This page is for people trying to source special needs equipment. https://www.facebook.com/groups/1399956500242406/

Every step toward awareness matters. 💙Slipper Day stickers are available with us, so grab yours and join the movement be...
09/05/2026

Every step toward awareness matters. 💙

Slipper Day stickers are available with us, so grab yours and join the movement before 29 May!

Wear your slippers, show your support, and be part of a cause supporting a cause.

Some say 13 is unlucky… we say it’s community.13 reasons. One community. Endless gratitude.Comment RARE if spot any of y...
08/05/2026

Some say 13 is unlucky… we say it’s community.

13 reasons. One community. Endless gratitude.

Comment RARE if spot any of your favourites!💜

13 Years of Impact For 13 years, your support has fuelled real change.Through advocacy, awareness, patient support, and ...
07/05/2026

13 Years of Impact

For 13 years, your support has fuelled real change.
Through advocacy, awareness, patient support, and policy engagement, we’re proving that kindness creates impact. 💛

Donate today and help us do even more.
https://www.rarediseases.co.za/donate-old

Every step toward awareness shortens the diagnostic journey. Earlier recognition leads to earlier diagnosis, and better ...
06/05/2026

Every step toward awareness shortens the diagnostic journey. Earlier recognition leads to earlier diagnosis, and better outcomes for rare disease communities.

Help make rare visible and shorten the diagnostic journey for families in need. 💙

The scariest part of rare disease is the unknown — and too often, families face it alone.Sacha’s story reflects the loca...
05/05/2026

The scariest part of rare disease is the unknown — and too often, families face it alone.

Sacha’s story reflects the local reality of living with a rare disease in South Africa: limited support, little research, and parents forced to navigate without a roadmap.

Read his story on our website; https://www.rarediseases.co.za/post/sacha-s-story-when-being-rare-means-being-unseen

If you’re able, please donate to support rare disease awareness, advocacy, and families in need.💙

Myth vs Fact matters.Because awareness leads to empathy.As we continue our 13‑days of Rare awareness, your support helps...
04/05/2026

Myth vs Fact matters.

Because awareness leads to empathy.

As we continue our 13‑days of Rare awareness, your support helps us keep educating, advocating, and showing up.

Support the work, donate today.💙

https://www.rarediseases.co.za/donate-old

13 years have taught us this:Rare is a diagnosis and not a definition.Understanding rare is where empathy begins.Stand w...
03/05/2026

13 years have taught us this:
Rare is a diagnosis and not a definition.

Understanding rare is where empathy begins.

Stand with us. Support the work.

Donate: https://www.rarediseases.co.za/donate-old

As we build toward our 13th year, we’re reflecting on what keeps this work going, people who show up, day after day, for...
02/05/2026

As we build toward our 13th year, we’re reflecting on what keeps this work going, people who show up, day after day, for the rare disease community.

Some say 13 is unlucky.

For us, it represents resilience, commitment, and collective strength.
13 years. Still standing. And still showing up.

Support the work that makes this possible.

Donate: https://www.rarediseases.co.za/donate-old

This Workers’ Day, we honour the people behind the work.The advocates, volunteers, and community members who show up, ev...
01/05/2026

This Workers’ Day, we honour the people behind the work.

The advocates, volunteers, and community members who show up, every day.

As we count down to 13 years of Rare Diseases South Africa, we’re reflecting on what 13 really means to us.

For 13 years, we’ve stood with rare disease patients and families — and we’re still standing.

Stand with us. Support the work.

Donate: https://www.rarediseases.co.za/donate-old

Wednesday Did‑You‑Know?🤔 Here’s a fact worth sharing!
29/04/2026

Wednesday Did‑You‑Know?🤔

Here’s a fact worth sharing!

Support Rare Diseases South Africa every time you shop at Woolworths and at no extra cost to you. Join MyDifference on t...
29/04/2026

Support Rare Diseases South Africa every time you shop at Woolworths and at no extra cost to you.

Join MyDifference on the Woolworths App, add RDSA as your cause, and scan your barcode when you shop.

It’s free, easy, and makes a real difference.

Address

Kingfisher House, 39A Kingfisher Road, Fourways
Johannesburg
2191

Opening Hours

Monday 09:00 - 16:00
Tuesday 09:00 - 16:00
Wednesday 09:00 - 16:00
Thursday 09:00 - 16:00
Friday 09:00 - 14:00

Telephone

+27105943844

Website

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