Sannies Soldiers

13/09/2022

The pure joy of unboxing Sans Soldiers!😁

We have waited long enough. She is on her fourth set of antibiotics in less than 2months 😢

This kid is so excited to have her dose... Not an emotion we have dealt with when it comes to her infusions... But we will take it 😅

First we write a test tomorrow, and then we infuse 💃

*****

EDIT: TONIGHT WE INFUSE 🧚‍♀️This soldier can't wait another night...

Hopefully this, plus the meds will hold us from going back to Dr Friday to have other meds added on, as she just is not shaking whatever she has 😑

29/06/2022

We had a lovely meeting with Prof Esser today. She is just the best with the biggest heart. ❤️

We going to continue the course of action with the Beriglobin for the next few months. Run her blood work and see if her levels have dropped again.

Her chronic fatigue is a part of her life now, and we just manage it as we go. If she is tired, let her rest. However all her sport really helps and Prof was supper impressed with her for that.

We starting to come to acceptance that she will live with Primary Immunodeficiency and Selective Antibody Deficiency. As much as we wish it would just be gone now, it is a part of our warrior and what makes her so amazing and so strong.

She beat Covid, she can beat anything! ⭐

Onwards and upwards from here as we continue to press on with medical aid to cover the exorbitant costs of the treatments. We have started the renewal process for her Beriglobin (Plasma Infusions) with medical aid. So far we have a few hurdles to cross, but hoping for full financial coverage.

Much love to all her family, friends, support and followers ❤️

30/06/2021

I apologise for this post but apparently the law states I must post it.
Hope you all stay ❤

PSA: POPI ACT

The compliance due date for the Protection of Personal Information Act, 4 of 2013 (“POPIA”), is the 30th June 2021.
This deadline brings a few requirements on our part.

One of these requirements is that the administrators of FB pages and groups will be required to obtain your consent for being part of this Facebook group.

As such, you are herewith notified that you are entitled to refuse such consent and you may exercise such a right by leaving this page by clicking the three dots … at the top right of your screen.

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In this regard, we implore on all members of this page not to make use of others personal information for whatsoever reason, without obtaining the consent of the relevant person.

Thank you for your support.

24/01/2021

We wanted to reach out again and thank everyone who helped us get Sannie onto the path of home infusions.🤗❤️ We realised the value in having her plasma at home in recent weeks, having to use a pead to manually pump her meds in his rooms. Not comfortable at all, although our new pead is absolutely wonderful ⭐

Our warriors first home infusion in Mosselbay has become a family affair. Unfortunately the wrong syringes were sent, resulting in them not fitting into the pump. So we all take turns to manually push the plasma through for San.

Not to worry, as most part of tomorrow will be spent sourcing the right syringes to make this a smooth and comfy process for our fighter. 😉😅

Recently we visited Prof Esser again and she was so happy with Sannies progress. Her levels are looking good. Whilst COVID is around, we have decided to not test the waters and see if she can maintain without her plasma, just yet. For now, we soldier up once a week, work on cleaning up the diet and adding in the vitamins and minerals through good healthy eating and loads of extra sleep as she often battles with exhaustion.

But we are convinced the fresh sea air and gorgeous sun out here on the garden route will make the world of difference!! ☀️🌅

PS: more than year of no hospital visits!! Clearly Beriglobin as a frontline is just what she needs 👏

29/04/2020

🙏🙏♥️♥️🙏🙏♥️♥️

We have been so overwhelmed by the outpouring of support from everyone who has continued to make donations during this time – thank you South Africa!

We are calling on all plasma and platelet donors to donate regularly. Find a plasma and platelet donor centre closest to you. https://bit.ly/2VEnq2c

We are open on weekends too.

26/04/2020

More than ever, Sannie and all her PID family need you to donate blood. The plasma in your blood, is what gives our PID patients a fighting chance against infection.
During this time we facing now, we have never needed our plasma more than now.

Sadly we seeing shortages worldwide and this poses a threat to our PID children, adults, family and friends.

Please help us, by donating blood at your nearest Blood Banks.

Ipopi

30/12/2019

My Oupa and me, catching my first fish 🐠

The excitement and adrenalin has sent her into such a spin 😂

@ Mazeppa Bay, Eastern Cape, South Africa

21/12/2019

Having fun with new Insta Filters 😂

Sannie bright and chipper, but still fighting some fatigue... Off to get her a red bull 😜😜😜

20/12/2019

Kitted and set up to start this journey at home, on our own from next week.

It's strange when mom becomes nurse... Not sure I ever wanted to be a nurse as a child 🤔😅

Again, this wouldn't be possible without you guys, thank you ❤️
https://www.backabuddy.co.za/champion/project/sannies-soldiers

20/12/2019

... And every hopsital admission 🙄😂🤦‍♀️

Treats for Tristan PiNSA and everybody else, can you relate?? 😂

19/12/2019

Sannie and her sister doing some experiments with skittles... Our Warrior is feeling 100 times better today, swimming, playing and setting up Obstacle courses with moms two tractor tyres for her gym 😂
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https://www.backabuddy.co.za/champion/project/sannies-soldiers
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