Kethan ARPKD Journey

Kethan ARPKD Journey ARPKD Awareness

26/07/2022

Besluit is gemaak om een nier uit te haal, dr skat hul weeg nou al 600 gram elk. Sy gaan chirug bel en ons venaand laatweet wanneer gaan hulle opereer.
Hy gaan op dialiese gaan dan daarna.
Hy is sterk genoeg om die operasie te doen. Infeksie 0 en cre is 1.

22/07/2022

Kethan Jacobs
Gebore 6 May 2022 (op 31 weke)
Geboorte gewig 1.88 kg

Kethan is gediagnoseer met ARPKD (autosomal polycystic recessive kidney disease)dit is n skaars gene siekte wat sy niere afekteer, sy niere het cysts op wat vol vog is.

Hy kan n normale lewe he, gaan later in sy lewe n nier oorplanting moet kry.

Op die oomblik is ons grootste probleem sy suurstof,agv van sy niere wat groot is is daar nie baie spasie vir sy longe nie.

Hy was 3 weke op n ventilator gewees om hom te help met suurstof ,hy kon daarvan af kom en is nogsteeds op suurstof.

Hy drink goed sy bottels maar desatureer nog baie omdat hy moeg word dan kry hy buis voeding.

Kethan is al amper 3 maande in NICU in Unitas hospitaal ,gesukkel met infeksie n paar keer en apnea waar hy heeltemal ophegou het asemhaal en word blou.

Hys so sterk seuntjie en n regte vegtertjie,hy leer ons elkedag om sterker geloof te he en te vertrou dat die Here hom op pas en in sy hande dra.

22/07/2022

Found on Google from medlineplus.gov

22/07/2022

What is autosomal recessive PKD?
Autosomal recessive polycystic kidney disease (ARPKD) is a rare genetic disorder that affects 1 in 20,000 children.8 A fetus or baby with ARPKD has fluid-filled kidney cysts that may make the kidneys too big, or enlarged. ARPKD can cause a child to have poor kidney function, even in the womb.

22/07/2022

Learn about the signs of autosomal recessive polycystic kidney disease and how your child’s health care team can help treat the complications of the disease.

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