Fibrous Dysplasia Warriors Africa Pty Ltd

Fibrous Dysplasia Warriors Africa Pty Ltd Fibrous Dysplasia Warriors Africa NPC is a non profit organisation created with the aim of finding a cure for Fibrous Dysplasia. We will also be hosting events.

Fibrous Dysplasia Warriors Africa NPC was created by both Esther Lukusa and Nella-Marie van Tonder with the aim to raise awareness for Fibrous Dysplasia. Esther and Nella (both fellow FD warriors) and Esther's younger sister Lina Lukusa strive to help find a cure. The main goal of this non-profit organisation is to help patients to pay their medical bills and contribute to the raising of funds in

order to find a cure for Fibrous Dysplasia. We are selling homemade jewelry, t-shirts, purses etc in order to raise enough funds. We are also aiming to help guide newly diagnosed patients navigate their journey. Find suitable doctors through patient past and present experience.

Did you see these?The holidays are approaching, decorate your tree, or your home by showing some with these limited ed...
28/10/2024

Did you see these?
The holidays are approaching, decorate your tree, or your home by showing some with these limited edition decor! Make the holidays a little bit brighter this year, support them, and support us! 😇💫🎄

🎄Introducing Our Limited Christmas Edition Trio!

'Tis the season to treat yourself and your loved ones to something truly special! We’re excited to share our exclusive Christmas Edition Trio this holiday season, designed to add a little extra magic to your festive celebrations.

Why You’ll Love It:
🎅 Festive packaging, perfect for gifting
🌟 Limited-edition design that captures the spirit of the season

Make this holiday season unforgettable with a touch of our Christmas Edition Trio. Get yours before they’re gone!

Shop Now: https://www.rarebearproject.org/product-page/ho-ho-ho-christmas-edition

Available only while stocks last—don’t miss out!

Image credit: CrochetHighway Design

Happy Heritage Day 2024 from Fibrous Dysplasia Warriors Africa! As we celebrate our diverse cultures and traditions, let...
24/09/2024

Happy Heritage Day 2024 from Fibrous Dysplasia Warriors Africa! As we celebrate our diverse cultures and traditions, let’s come together around the braai, sharing stories, good food, and the strength that unites us. Together, we rise!

If you have not yet, please make sure to update, or do take the survey! Hope you are all doing well!
24/09/2024

If you have not yet, please make sure to update, or do take the survey!
Hope you are all doing well!

This month’s featured FD/MAS Registry survey is all about Pain treatment and other medications. We know your treatment may change over time, which is why we encourage you to come back and update your surveys from time to time! The more we share, the more powerful our data will be for research! www.fdmasregistry.org

Remember to shop your bear! Show your stripes and support the Rare Bear Project The Rare Bear Project 🐻
24/09/2024

Remember to shop your bear! Show your stripes and support the Rare Bear Project The Rare Bear Project 🐻

24/09/2024

FD/MAS Alliance Group:
https://www.facebook.com/fibrousdysplasia

The FD/MAS Alliance, incorporated as the Fibrous Dysplasia Foundation, is the leading patient advocacy organization supporting individuals affected by fibrous dysplasia and McCune-Albright syndrome.

Address

Rivonia

Telephone

+27715360921

Website

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