Sickle cell awareness

21/01/2024

Did you know that any form of stress be it emotional, physical, psychological or mental stress can trigger a crisis?

21/01/2024

That's why it's important to know your Genotype before getting married.

20/01/2024

Something to learn.

20/01/2024

To all sickle cell warriors out there please keep warm the weather is not friendly.
Stay safe avoid triggering a crisis 😊

19/01/2024

Be that change that will break the chain get tested and know your Genotype protect your offsprings.

19/01/2024

How long should a sickle cell crisis last?
A sickle cell crisis can last between few hours to several months . It's possible for sickle cell patient to be in crisis for months.
Research shows that 50% of sickle cell patient experience chronic pain .
Chronic pain which is defined as pain that last more than 3 month but in sicklecell it is defined as presences of diseases related pain on greater or equal to 3days in a week in period of 6months.
So it's possible for sickle cell patient to be in pain everyday. I have what we call chronic pain syndrome which has been poorly managed because we have limited options of treatment.
Poorly managed chronic pain will cause flair up you end up having Acute on chronic pain .

It is important for medical personnels to be equipped with knowledge on sickle cell for us to manage patients living with the disease because many are the times we've experienced negligence due to lack of knowledge on the disease.

19/01/2024

19/01/2024

What is a sickle cell crisis?
The term "sickle cell crisis" is used to describe several acute conditions such as the vaso-occlusive crisis (acute painful crisis), aplastic crisis, splenic sequestration crisis, hyperhemolytic crisis, hepatic crisis, dactylitis, and acute chest syndrome.

How does a crisis come about?
This occurs when the flow of blood is blocked to an area because the sickled cells have become stuck in the blood vessel. The pain can occur anywhere, but most often occurs in the chest, arms, and legs. Infants and young children may have painful swelling of the fingers and toes.

19/01/2024

Get tested today and know your genotype to protect your offsprings from Sickle cell

19/01/2024

Sickle cell disease is a group of inherited red blood cell disorders that affect hemoglobin, the protein that carries oxygen through the body. Normally, red blood cells are disc-shaped and flexible enough to move easily through the blood vessels. In sickle cell disease, red blood cells become crescent- or “sickle”-shaped due to a genetic mutation. These sickled red blood cells do not bend or move easily and can block blood flow to the rest of the body.
The blocked blood flow through the body can lead to serious problems, including stroke, eye problems, infections, and episodes of pain called pain crises.

Sickle cell disease is a lifelong illness. A bone marrow transplant is currently the only cure for sickle cell disease. Gene therapy is also being explored as another potential cure, but there are other effective treatments that can reduce symptoms and prolong life. If you have sickle cell disease, your healthcare team will work with you on a treatment plan to reduce your symptoms and manage the condition.

The condition affects more than 100,000 people in the United States and 20 million people worldwide. In the United States, most people who have sickle cell disease are of African ancestry or identify themselves as Black.

This is a sickle cell awareness page giving you all information you need to know about sickle cell.