Erica's Journey

Erica's Journey Erica was born on 8th January 2013, this page is devoted to her journey. Erica was born on 8/1/2013, six and a half weeks early. Pierre Robin Sequence.
3.

During the pregnancy we were told that she will have a lot of health issues and to prepare ourselves for the worst. Erica is getting stronger every day and is currently at kindie 3 days a week and going to full time primary in 2018. Here is a list of her conditions.
1. Chromosomal disorder 1q deletion 10p duplication with resultant lissencephaly and absent corpus callosum.
2. Short stature and microcephaly.
4. Mild pulmonary stenosis.
5. Soft grade 1 systolic murmur.
6. Bilateral mild hearing loss.
7. Dyskinetic quadriplegia.
8. Cleft palate.
9. Hip Dysplasia.
10. Fed 100% via a stomach PEGJ

PCH today for Respiratory appointment, all boxes ticked.
07/04/2026

PCH today for Respiratory appointment, all boxes ticked.

Quick trip to the shops
02/04/2026

Quick trip to the shops

PCH Cardiology today, all boxes ticked
31/03/2026

PCH Cardiology today, all boxes ticked

27/03/2026

Switching with Elvis

Very comfy
26/03/2026

Very comfy

At Joondalup shops getting present for George
09/03/2026

At Joondalup shops getting present for George

Spending time in the stander watching some Hi5
07/03/2026

Spending time in the stander watching some Hi5

Standing frame repairs done. Erica having a fun time with Elvis
04/03/2026

Standing frame repairs done. Erica having a fun time with Elvis

03/03/2026

Elvis is in the house

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Perth, WA

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