Cystic Fibrosis WA

29/08/2025

Come with us BTS filming for our new resources, hearing from the community about life in the modulator era.

27/08/2025

Picture yourself soaking up the sun on the stunning beaches of Santorini, wandering through the ancient ruins of Athens, or sailing the crystal-clear waters around Mykonos. 🏖️

Well you can make that dream a reality by entering Cystic Fibrosis WA's 50th Anniversary Raffle where you could win $25,000 cash or a $25,000 travel voucher. https://cfwa.auraffles.com.au/

Terms and Conditions apply Permit LS223452925.

26/08/2025

Our Year of the Frog project continues to be hugely successful. This collaboration with PCH first began to encourage more kids with CF to produce 4 sputum samples a year, which helps the team detect any bugs that may be found in the lungs and enable quicker treatment.

Once the kids get 4 stamps from clinic, they can visit us to receive a prize of their choice. Mum Jess said the that the passport gave Molly a meaningful goal to work towards and helped her keep track of her progress. She said Molly was excited to visit the team at PCH and show off her passport updates- it made hospital visits just that little bit more enjoyable! Well done to all our superstars! 💫

Learn more about the Frog Project here https://www.cfwa.org.au/year-of-the-frog/

26/08/2025

PBAC Deputy Chair Jo Watson has provided a clarifying statement regarding the deferral of Alyftrek.

Following last Friday’s announcement regarding the deferral of Alyftrek, CFA CEO Jo Armstrong and PBAC Deputy Chair Jo Watson had urgent correspondence to seek further clarity for our community.

We thank Jo Watson for her time and for providing the following statement:

“The TGA Delegate’s Overview is required before PBAC can provide further advice and a final recommendation for Alyftrek.

Once this is provided to the Committee by the TGA, the PBAC will be asked to consider at a future meeting.

Once this information is available, the PBAC will be keen to reconsider the item under deferral as soon as possible.”
– Jo Watson, Deputy Chair, PBAC

Cystic Fibrosis Australia will continue to push for this matter to be resolved urgently. We will keep you updated every step of the way and thank you for your ongoing support and advocacy.

Together, we remain steadfast in our commitment to ensuring timely access to Alyftrek for eligible Australians living with CF.

25/08/2025

🎉 GIVEAWAY TIME! 🎉

Win a Garmin Forerunner 55 Sports Watch valued at $350 when you get off $0! ⌚

This powerful GPS watch will help you track your runs, monitor your heart rate, and smash your goals during Sweatember - because sweaty progress deserves smart tracking.

To enter, simply raise any amount by 31 August to enter the draw.

This giveaway is open to Australian residents. Giveaway closes at midnight on Sunday, 31 August with the winner drawn and announced on Monday, 1 September.

Tag your team, spread the word, and let’s get fundraising! 💪

This giveaway is in no way sponsored, endorsed or administered by or associated with Meta (Facebook or Instagram).

22/08/2025

Disappointing news today. PBAC has made the decision to defer the listing of Alyfrek on the PBS. CFA have been in touch with the PBAC already requesting that they ensure this is on their agenda for the September 5 intracycle meeting so that the process can be expediated.

We will continue to work with CFA and the other CF Federations to push for access to Alyftrek and future CF modulator treatments.

21/08/2025

🧢 BACK BY POPULAR DEMAND! 🧢

The next 20 people to sign up to Sweatember in the next 24 hours will win an iconic Budgy Smuggler Bucket Hat!

Push your limits for a great cause and take on a sweaty challenge to support people living with cystic fibrosis.

Support Team WA when you sign up to Sweatember to receive your FREE gift! https://sweatember.org.au/

20/08/2025

We’re pumped to welcome former AFL star and current Triple M funnyman Xavier Ellis as our official Team WA Ambassador for Sweatember 2025! 💦

Xavier might be known for his epic injury record than his stats sheet during his days at Hawthorn Football Club and the West Coast Eagles - but these days, he’s kicking goals behind the mic and at home as a proud dad.

Sweatember has become personal for Xav. In 2023, his nephew William was diagnosed with cystic fibrosis (CF) at just two weeks old. Since then, he’s been on a mission to raise awareness and support for the CF community - and we’re honoured to have him leading the charge for WA this year.

Let’s rally behind Xav and make every drop of sweat count this September! Sign up or donate today: https://sweatember.org.au

19/08/2025

1 in 25 Australians are carriers of cystic fibrosis. 🌹

Unfortunately, we can’t offer a 1 in 25 chance to win our anniversary raffle, but a chance of 1 in 5,000 for an incredible chance to win $25,000 still feels like strong odds.

Odds are that $25,000 will make a difference to your life, buying a ticket is a winning way to support people living with cystic fibrosis and their families. https://cfwa.auraffles.com.au/

16/08/2025

💦 FREE GIFT WHEN YOU SIGN UP TO SWEATEMBER 💦

Sign up to Sweatember by midnight tonight and the first 20 people will receive a FREE bucket hat from Budgy Smuggler!

This September, we challenge you to get moving however you like: walk, run, ride, dance, swim, stretch, skate or squat your way through the month. Whatever gets your body moving and heart pumping, it makes a difference.

Sign up for Team WA to redeem your FREE gift! https://sweatember.org.au/

15/08/2025

Last chance to save $389 on the Hike for Health Larapinta Trail 2026! 😱

Tomorrow is the last day to redeem our early bird discount on our Hike for Health with Inspired Adventures.

Make your steps count for people living with cystic fibrosis as you hike 39km through the Red Centre, summit Mount Sonder for a sunrise like no other and camp under the stars.

Don’t miss out and secure your spot today! https://inspiredadventures.com.au/event/cfwa-2026-larapinta/

14/08/2025

This year we are celebrating 50 years of improving the lives of Western Australians impacted by cystic fibrosis! ❤️

To mark this momentous occasion, we are running a 50th Anniversary Raffle with proceeds going towards our amazing cause. Advances in treatment have improved lung function and life expectancy for many people living with cystic fibrosis, but there is still no cure.

Get your tickets today to ensure you and your loved ones are in the draw for a life changing prize. https://cfwa.auraffles.com.au/