Cystic Fibrosis WA

Cystic Fibrosis WA Cystic Fibrosis WA (CFWA) was established by a group of parents in 1975. Since those early days, we have grown into a professional not for profit organisation.

Today CFWA provides a comprehensive range of services, in home support, and resources for people affected by cystic fibrosis (CF) in Western Australia. We have built strong partnerships and continue to collaborate with a range of state and national organisations, and contribute extensively to CF research.

Our Virtual Rose Garden is now live - and this year, every rose has been hand drawn by children living with cystic fibro...
15/04/2026

Our Virtual Rose Garden is now live - and this year, every rose has been hand drawn by children living with cystic fibrosis.

These kids are part of CF Kids Connect, an online program that helps children build friendships, and take part in fun group activities from home. Funds raised through 65 Roses Day help make programs like CF Kids Connect possible.

Each rose is a beautiful symbol of courage, creativity, and hope for tomorrow. Choose your donation amount, dedicate a rose to someone special, and help grow the garden together 💙

Plant a virtual rose today: https://rosegarden.org.au/

Our community makes 65 Roses Day possible🌹 By selling roses across Perth and WA, you’re helping raise awareness and vita...
13/04/2026

Our community makes 65 Roses Day possible🌹

By selling roses across Perth and WA, you’re helping raise awareness and vital funds for people living with cystic fibrosis.

Last year, our community sold over 26,000 roses. This year, we’re aiming even higher - and we’d love you to be part of it.
✔️ No pre payment required
✔️ Roses wrapped and ready to sell
✔️ Easy pick up or delivery
Order your roses today! https://fundraise.cfwa.org.au/event/65-roses-day-2026/home

Meet Amaya🌹Amaya volunteered as a stall attendant for 65 Roses Day last year - and loved it so much; she’s coming back a...
08/04/2026

Meet Amaya🌹
Amaya volunteered as a stall attendant for 65 Roses Day last year - and loved it so much; she’s coming back again this year!

After moving to Perth, 65 Roses Day was her very first volunteer experience. Knowing that even small efforts could make a real difference inspired her to get involved again.

“I’d highly encourage anyone to sign up to volunteer for 65 Roses Day - you won’t regret being part of something so meaningful.”

Ready to follow in Amaya’s footsteps? Volunteer with us this 65 Roses Day as a stall attendant or delivery driver and help support West Australians living with cystic fibrosis: https://fundraise.cfwa.org.au/event/65-roses-day-2026/volunteer

This June, Donnelle is taking on the iconic Larapinta Trail with Inspired Adventures - hiking 39km through the Red Cent...
06/04/2026

This June, Donnelle is taking on the iconic Larapinta Trail with Inspired Adventures - hiking 39km through the Red Centre to raise vital funds for people living with cystic fibrosis.

Thanks to her incredible commitment, she’s already raised over $2,000, and we’re so grateful for the support behind her so far. 💙

Now, we’d love even more people to get behind Donnelle as she steps up for this cause. From summiting Mount Sonder at sunrise to camping under the stars and connecting with Indigenous culture, every step makes a difference.

Let's cheer on Donnelle and support her fundraising here: https://cfwa.grassrootz.com/cfwa-larapinta-2026/donnelle-oakley

📅 Save the Date! 📅You are cordially invited to set sail on Wednesday, 4 November 2026 as the Cystic Fibrosis WA Breathe ...
03/04/2026

📅 Save the Date! 📅
You are cordially invited to set sail on Wednesday, 4 November 2026 as the Cystic Fibrosis WA Breathe Regatta returns to the stunning Royal Freshwater Bay Yacht Club.

Join us for an uplifting afternoon on the beautiful Swan River as we sail together to fuel vital research and support services for Western Australians living with cystic fibrosis.

📩 Want to get involved? Register your interest today! https://form.jotform.com/260780612590861

Every step you take at HBF Run for a Reason can help make a difference to individuals living with cystic fibrosis. 🏃🏻‍♀️...
02/04/2026

Every step you take at HBF Run for a Reason can help make a difference to individuals living with cystic fibrosis. 🏃🏻‍♀️

And there’s still time to join us! Raise $250 or more and you’ll go in the draw to win a Google Fitbit Inspire 3 - our biggest prize yet!* ⌚✨

👉 Sign up now: https://www.hbf.com.au/run
*Raise $250 by 24 May to go in the draw. Winner announced 25 May.

CFWA continues to collaborate in advocating for access to life-saving technology for adults with cystic fibrosis related...
01/04/2026

CFWA continues to collaborate in advocating for access to life-saving technology for adults with cystic fibrosis related diabetes. Losing access to subsidised continuous glucose monitors (CGMs) at the age of 21 means potential out-of-pocket costs of over $2,500 per year.

Last week, we joined 13 other organisations in writing to the Federal Health Minister, Mark Butler MP, to emphasise the need for expanded subsidised CGM access as a priority.

Read the open letter herehttps://www.cfwa.org.au/wp-content/uploads/2026/03/Open-Letter-to-Minister-Butler-26-March-2026.pdf

Incredibly grateful and proud today, to be named as one of the 147 Telethon beneficiaries for 2026.Thank you Telethon7 P...
01/04/2026

Incredibly grateful and proud today, to be named as one of the 147 Telethon beneficiaries for 2026.

Thank you Telethon7 Perth for supporting our vital work.

31/03/2026

Get your NEW CFWA red shirts now! 👕

We have officially launched our ‘Making Every Breath Count’ shirt, which you can now purchase on our website!

With our logo on the front and some rosy lungs on the back, you can rep our new red shirt while out on a fundraiser or volunteering. Grab some now for 65 Roses Day before they run out!

https://www.cfwa.org.au/shop/make-every-breath-count-shirt/

Who are the most important people in your life? 👨‍👩‍👧Life can change in an instant - for all of us. That’s why writing y...
30/03/2026

Who are the most important people in your life? 👨‍👩‍👧

Life can change in an instant - for all of us. That’s why writing your will now is one of the most loving things you can do for the people you care about most.

It's the last day to take advantage of our FREE will offer through our partners Safewill – create your valid will today. https://bit.ly/cfwa-safewill

27/03/2026

Living with CF means your body can experience a lot of change over time, and with new treatments helping people live longer, the CF journey is evolving.

People with CF are now navigating new questions around physical and mental health, medications, family planning and ageing with CF.

Learn more at our website: www.cfwa.org.au/futures/my-body

This resource is part of our CF Futures series, grounded in lived experience and practical guidance shaped by our community.

CF Futures has been made possible thanks to generous support from Lotterywest.

We recently hosted Jonathan Huston MLA, Member for Nedlands and Shadow Minister for Deregulation; Small Business; Publi...
26/03/2026

We recently hosted Jonathan Huston MLA, Member for Nedlands and Shadow Minister for Deregulation; Small Business; Public Sector Reform; and Veterans, at our CFWA office this week. 📣

During his visit, our CEO Lisa Bayakly shared the work we do to support people living with cystic fibrosis in Western Australia, the ongoing need for practical and financial assistance for families, and our continued advocacy for a new adult CF Outpatient clinic.

Building strong relationships across all sides of Parliament helps strengthen awareness and support for the CF community, and we appreciate Jonathan taking the time to meet with us and learn more about the challenges faced by people with CF.

Address

The Niche, 11 Aberdare Road
Perth, WA
6009

Opening Hours

Monday 8am - 4pm
Tuesday 8am - 4pm
Wednesday 8am - 4pm
Thursday 8am - 4pm
Friday 8am - 4pm

Telephone

+61862244100

Website

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