Cystic Fibrosis WA

Cystic Fibrosis WA Cystic Fibrosis WA (CFWA) was established by a group of parents in 1975. Since those early days, we have grown into a professional not for profit organisation.

Today CFWA provides a comprehensive range of services, in home support, and resources for people affected by cystic fibrosis (CF) in Western Australia. We have built strong partnerships and continue to collaborate with a range of state and national organisations, and contribute extensively to CF research.

We’re so excited to share that our CF Kids Connect program was a finalist at the 2025 Alike WA Brighter Together Gala f...
27/10/2025

We’re so excited to share that our CF Kids Connect program was a finalist at the 2025 Alike WA Brighter Together Gala for the Digital Connection Award! 💙

This award celebrates peer support groups that create safe, consistent, and meaningful connections online. It highlights the incredible power of digital spaces to bring people together, reduce isolation, and build community across distances.

We’re beyond proud of what CF Kids Connect has achieved — helping children with CF and their families connect, share, and support one another in ways that aren’t possible face-to-face due to health risks.

Thank you to everyone who makes this program such a special and supportive community! 💫

👉Learn more here https://www.cfwa.org.au/what-we-offer/support-programs/kidsconnect/

We're celebrating 50 years of Cystic Fibrosis WA with a special anniversary raffle and there are only 5,000 tickets avai...
22/10/2025

We're celebrating 50 years of Cystic Fibrosis WA with a special anniversary raffle and there are only 5,000 tickets available! 🎉

By buying a ticket, you’re going in the draw to win a life-changing $25,000 and you’re also supporting people in WA living with cystic fibrosis, funding vital research, and helping families who need it most.

From uncertain beginnings in the 70s to today’s breakthroughs, we’ve come a long way – but there’s still no cure, and not everyone can access the treatments they need.

Every ticket brings us closer to that goal - so don't miss out! https://cfwa.auraffles.com.au/

K-pop beats for a cause! 🎶 A huge shoutout to Marlene and the incredible school community for hosting their K-pop Demon ...
21/10/2025

K-pop beats for a cause! 🎶

A huge shoutout to Marlene and the incredible school community for hosting their K-pop Demon Hunters Disco to help “take down CF”!

The event was full of colour, energy and amazing community spirit; raising over $1,800 to support people living with cystic fibrosis.

Thank you, Marlene, for your creativity, enthusiasm and dedication in bringing everyone together for such a fun and meaningful night!

The Breathe Regatta – Bronze Sponsors Highlight 🥉 A special shoutout to our Bronze Sponsors Trident Insurance Group and ...
20/10/2025

The Breathe Regatta – Bronze Sponsors Highlight 🥉

A special shoutout to our Bronze Sponsors Trident Insurance Group and Beyond Bank for supporting the Breathe Regatta! 💙

Trident Insurance provide specialist insurance and risk management services. Beyond Bank is an Australian customer-owned bank committed to community support.

Your generosity helps us create an unforgettable regatta experience on the Swan River while raising vital funds for people living with cystic fibrosis in WA.

Thank you for being part of our mission to make a difference!

The Breathe Regatta – Silver Sponsors Highlight 🥈 A huge thank you to our Silver Sponsors, KPMG Australia and Aerodrome ...
17/10/2025

The Breathe Regatta – Silver Sponsors Highlight 🥈

A huge thank you to our Silver Sponsors, KPMG Australia and Aerodrome Management Services (AMS), for supporting the inaugural Breathe Regatta. 💙

KPMG is a global professional services firm providing audit, tax, and advisory solutions. AMS was established in 1996 and has been leaders in airport and aerodrome operations and management.

Their support helps us bring this exciting inaugural event to life — from yachts on the Swan River to the Bayside Party — while raising essential funds for families living with cystic fibrosis across WA.

We’re so grateful for your partnership in making waves for a great cause!

17/10/2025

The PBAC has recommended Alyftrek for listing on the PBS, a significant milestone for Australians living with cystic fibrosis (CF).

Alyftrek is a once-daily triple-combination CFTR modulator therapy for people aged 6+ with at least one F508del or another responsive CFTR mutation.

While TGA approval and final processes are still underway, we’re hopeful that the PBS listing will occur in the first quarter of 2026. CFA is working closely with all stakeholders to ensure timely access for the community.

Why this matters: More Australians with CF will have access to life-changing treatment that can improve lung function and quality of life.

Read more about Alyftrek and what this means for the CF community: http://bit.ly/4qkq5ue

Young carers in our community joined us for our annual Sibs and Kids' Camp over the school holidays. This important even...
16/10/2025

Young carers in our community joined us for our annual Sibs and Kids' Camp over the school holidays. This important event gives children who have a sibling or parent with CF the chance to enjoy two days of fun and friendship and connect with others who understand their unique journey.

We’re so grateful for partners like Lotterywest who help make moments like this possible 💙

LAST CHANCE! Tickets for Breathe Regatta 2025 close TODAY! 🎯 Don’t miss your opportunity to join us on Thursday 30 Octob...
15/10/2025

LAST CHANCE! Tickets for Breathe Regatta 2025 close TODAY! 🎯

Don’t miss your opportunity to join us on Thursday 30 October for an unforgettable afternoon on the Swan River for an important cause. Whether you’ve never sailed before or you’re a seasoned skipper, every ticket helps fund vital research and support services for people in WA living with cystic fibrosis.

⚓ Individual Sailing Ticket – $275
Hop aboard a yacht and experience the thrill of racing thanks to River Sailing, alongside professional skippers and crew.

🍹 Bayside Party Ticket – $150
Prefer to stay shoreside? Enjoy live entertainment, food, drinks, and the post-race celebrations at the Royal Freshwater Bay Yacht Club.

Ready to sail? Register now before it’s too late https://bit.ly/breathe-regatta

We are very pleased to announce the latest round of research grants being awarded to WA cystic fibrosis researchers as p...
15/10/2025

We are very pleased to announce the latest round of research grants being awarded to WA cystic fibrosis researchers as part of the WA Cystic Fibrosis Research Collaborative Program.

These 5 projects, totalling more than $900k, each focus on a different aspect of CF treatment and care. This significant investment will help tackle the diverse and changing issues related to living with CF.

The WA Cystic Fibrosis Research Collaborative Program is a partnership between the Western Australian Future Health Research and Innovation (FHRI) Fund and Cystic Fibrosis WA (CFWA), in collaboration with Conquer Cystic Fibrosis (CCF).

Visit our website for more information about these exciting research projects. www.cfwa.org.au/what-we-offer/research-advocacy/wa-cystic-fibrosis-research-collaboration-program

Meet Milah, a Year 6 student from Kalgoorlie who lives with cystic fibrosis – and is making a difference for others just...
14/10/2025

Meet Milah, a Year 6 student from Kalgoorlie who lives with cystic fibrosis – and is making a difference for others just like her. 👏

Milah organised a fundraiser at her school, including a fun CF PJ Day, and with the incredible support of her mum, Lindsay, they raised nearly $2,000!

We are so grateful to both Milah and Lindsay for their kindness, energy, and dedication – every dollar raised helps us continue supporting people living with cystic fibrosis in WA.

Thank you, Milah and Lindsay, – you’re both incredible!

The Breathe Regatta – Gold Sponsor Highlight 🏅 We’re thrilled to have Pitts Design and Construction as our Gold Sponsor ...
13/10/2025

The Breathe Regatta – Gold Sponsor Highlight 🏅

We’re thrilled to have Pitts Design and Construction as our Gold Sponsor for the inaugural Breathe Regatta! 💙

Pitts Design & Construction is a fast-growing commercial builder known for its collaborative, client-focused approach and delivering high-quality projects on time and on budget.

Their support helps us deliver an unforgettable day on the Swan River, bringing together crews, supporters, and the community - all while raising vital funds for West Australians living with cystic fibrosis.

Thank you, Pitts Design & Construction, for helping us make a real difference!

This week is National Carers Week. A time to time to recognise, celebrate and raise awareness about the 3 million Austra...
13/10/2025

This week is National Carers Week. A time to time to recognise, celebrate and raise awareness about the 3 million Australians who provide care to a family member or friend.

In particular, we acknowledge the many people in our community; parents, children, partners, siblings, grandparents and more, who take on a vital role in caring for someone with CF.

WA

CFWA offer a range of supports and services to carers. Find out more here https://www.cfwa.org.au/living-with-cf/parents-and-carers/

Address

The Niche, 11 Aberdare Road
Perth, WA
6009

Opening Hours

Monday 8am - 4pm
Tuesday 8am - 4pm
Wednesday 8am - 4pm
Thursday 8am - 4pm
Friday 8am - 4pm

Telephone

+61862244100

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