
16/06/2025
Having lost both mum and dad to this insidious disease, I understand this all too well. If you have someone living with the dementia, I hope this helps you 💕
“If I get dementia, I’d like my family to hang this wish list up on the wall where I live. I want them to remember these things”.
1a. (This is my personal experience add on). “Every time you enter the room announce yourself. “Hi Mom- it’s Rebecca.” “NEVER ask- Do you know who I am??? That causes anxiety”.
Rebecca 💙
1. “If I get dementia, I want my friends and family to embrace my reality”.
2. “If I think my spouse is still alive, or if I think we’re visiting my parents for dinner, let me believe those things. I’ll be much happier for it”.
3. “If I get dementia, don’t argue with me about what is true for me versus what is true for you”.
4. “If I get dementia, and I am not sure who you are, do not take it personally. My timeline is confusing to me”.
5. “If I get dementia, and can no longer use utensils, do not start feeding me. Instead, switch me to a finger-food diet, and see if I can still feed myself”.
6. “If I get dementia, and I am sad or anxious, hold my hand and listen. Do not tell me that my feelings are unfounded”.
7. “If I get dementia, I don’t want to be treated like a child. Talk to me like the adult that I am”.
8. “If I get dementia, I still want to enjoy the things that I’ve always enjoyed. Help me find a way to exercise, read, and visit with friend”..
9. “If I get dementia, ask me to tell you a story from my past”.
10. “If I get dementia, and I become agitated, take the time to figure out what is bothering me”.
11. “If I get dementia, treat me the way that you would want to be treated”.
12. “If I get dementia, make sure that there are plenty of snacks for me in the house. Even now if I don’t eat I get angry, and if I have dementia, I may have trouble explaining what I need”.
13. “If I get dementia, don’t talk about me as if I’m not in the room”.
14. “If I get dementia, don’t feel guilty if you cannot care for me 24 hours a day, 7 days a week. It’s not your fault, and you’ve done your best. Find someone who can help you, or choose a great new place for me to live, but please continue to visit me”.
15. “If I get dementia, and I live in a dementia care community, please visit me often”.
16. “If I get dementia, don’t act frustrated if I mix up names, events, or places. Take a deep breath. It’s not my fault”.
17. “If I get dementia, make sure I always have my favorite music playing within earshot”.
18. “If I get dementia, and I like to pick up items and carry them around, help me return those items to their original place”.
19. “If I get dementia, don’t exclude me from parties and family gatherings”.
20. “If I get dementia, know that I still like receiving hugs or handshakes”.
21. “If I get dementia, remember that I am still the person you know and love, evenn if I don’t remember”.
ᴄᴏᴘʏ ᴀɴᴅ ᴘᴀsᴛᴇ in Honor of someone you know or knew who has dementia. In Honor of all those I know and love and lost who are fighting Dementia/Alzheimer’s Disease.