Elena’s Journey

Elena’s Journey Elena was born with a rare birth defect called CDH. Follow along to see her miraculous journey

Now that Elena’s stoma (where the opening was from her trach) has closed over, I was finally able to take her to the bea...
08/04/2025

Now that Elena’s stoma (where the opening was from her trach) has closed over, I was finally able to take her to the beach this past weekend!

She quickly fell in love with the water and was even swimming with help a bit yesterday while visiting her great gram in Wallace. She also went on the ATV for the first time and she absolutely LOVED it!

What a beautiful amazing weekend showing Elena new things🤍 living in the days I prayed so much for while Elena was sick🤍

07/18/2025

And just like that, Elena decided to walk! She has taken little steps in the past by herself but has never walked like this before! She’s struggled with balance however the past few days she’s been taking more and more steps by herself and building her confidence. Forever greatful for little Elena 🤍

07/15/2025

Elena with her new wheels! Elena is going to Pre Kindergarten starting in September and due to her not walking fully by herself yet, she will need a wheelchair to get on and off the school bus. This is only her second time in a wheelchair but she took to it immediately! (The wheelchair is not long term, however due to the transportation rules she needs one for school. Still hoping and praying for her to be able to walk on her own in the near future). She of course had to have her snack on her lab while driving around as well.

Hope everyone had a great Canada Day 🇨🇦A little throwback to Elena’s first Canada Day in the hospital compared to yester...
07/02/2025

Hope everyone had a great Canada Day 🇨🇦

A little throwback to Elena’s first Canada Day in the hospital compared to yesterday when her and I were at the park.
So much has changed and she sure is growing🤍

Elena has still not had any more seizures in the past two weeks which is such a huge blessing. She’s been a very hapoy l...
06/13/2025

Elena has still not had any more seizures in the past two weeks which is such a huge blessing.

She’s been a very hapoy little girl🤍

I will ask for a prayer request for her, she hasn’t had much of an appetite since coming home from the hospital. Thankfully she has the feeding tube and I’m able to give her more nutrition through that, however would love to get her back up to mostly oral food.
Her sleep has also been insanely off but hoping that will settling in the coming week.

Thank you all for your continued prayers, positive thoughts, kindness and support❤️‍🩹

Elena thankfully has been doing well. She has been a lot more tired since her seizure last Sunday but she’s getting lots...
06/02/2025

Elena thankfully has been doing well. She has been a lot more tired since her seizure last Sunday but she’s getting lots of good rest while her body heals ❤️‍🩹

In other news, last week Elena and I moved and she’s adjusting to our new home really well!

Her cousins are up visiting from PEI and they have had lots of good laughs and fun this past weekend🤍

Elena seizure update #5: Yesterday afternoon Elena was discharged from the iwk and she was finally able to come home🤍 I...
05/29/2025

Elena seizure update #5:

Yesterday afternoon Elena was discharged from the iwk and she was finally able to come home🤍

I am monitoring her closely. She had a great sleep last night and is currently having a nap now. She’s been more tired the last few days which is understandable but other than that she has been doing perfectly.

We will all definitely be on edge for the coming weeks hoping no other seizures occur. Thankfuly all of her brain scans showed no seizure activity ❤️‍🩹

Thank you all for your continued prayers and positive thoughts for Elena.

Elena seizure update #4: Elena had a great sleep last night and there has been no signs of another seizure so far. Doct...
05/27/2025

Elena seizure update #4:

Elena had a great sleep last night and there has been no signs of another seizure so far.

Doctors don’t know why she had a seizure Sunday morning. Elena had brain scans, an MRI, bloodwork, urine samples taken, X-rays and everything came back completely normal and no signs of brain damage. Which is all great news.

We are still in hospital waiting to speak with a few specialists and also waiting for her to get a new G/J feeding tube as her old one broke. It’s looking like she will stay in hospital tonight, get the new feeding tube tomorrow and then go home tomorrow. However medically she has been doing great and is pretty much back to normal other than being a bit more sleepy than usual, which is expected after what she’s been through ❤️‍🩹

Thank you for all of your continued love and support towards sweet Elena, and I ask that you continue to send your prayers and positive thoughts her way🤍

Elena seizure update #3: Elena had a few hours of sleep last night with mama and is doing well this morning. She’s fina...
05/26/2025

Elena seizure update #3:

Elena had a few hours of sleep last night with mama and is doing well this morning. She’s finally wanting to eat some food and is enjoying seeing her nursing friends from when we lived here on PMU back in 2022.

Elena will be staying overnightt at the iwk tonight while her medical team monitor her and look for answers on why she had this maskge seizure.

She just had an EEG (a bunch of things hooked up to her head and scanning to see if there is seizure activity). We will get those results back end of day or tomorrow morning.

Thank you all for your continued support for little miss Elena and please continue to pray for her and for her to not have another seizure 🤍

Elena seizure update #2:She woke up about an hour and a half ago and spoke for the first time since the seizure this mo...
05/25/2025

Elena seizure update #2:

She woke up about an hour and a half ago and spoke for the first time since the seizure this morning.

Her MRI and X-rays showed no shunt issues and doesn’t seem to be any brain damage.

She may have thrown up and aspirated a bit however doctors aren’t 100% sure and will need to assess this further.

Elena will be staying in at the iwk overnight to be monitored.

Right now there are no answers on what caused the seizure.

It was a relief to hear her little voice and see her eyes open after everything this morning.

Thank you for your prayers and please continue to pray for her as we search for answers.

**New update posted**Urgent prayer request for Elena! This morning Elena had her first ever seizure. Her body was comple...
05/25/2025

**New update posted**

Urgent prayer request for Elena!

This morning Elena had her first ever seizure. Her body was completely limp in my arms and she was not responsive. 911 was called immediately and they gave her medication to stop the seizure after it was going on for about 45 minutes.
She was rushed to emergency via ambulance and she is getting X-rays, bloodwork, MRIs done to see what the cause of this is.

She is groggy due to the medication but she has let out a few cries in the last hour.

Right now she’s not moving her right side as much as her left side.

Please pray for our little girl. I will update with any new news.

Popping on here to say Elena has been doing absolutely fantastic since getting her trach out! Shes been insanely happy, ...
04/28/2025

Popping on here to say Elena has been doing absolutely fantastic since getting her trach out!
Shes been insanely happy, energetic and talkative the past few days.

Another update is that Elena will be starting pre kindergarten in September which will be a big transition for her but will also be amazing for her development.

Forever blessed to call this beautiful strong little girl my daughter 🤍

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Halifax, NS

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