10/14/2025
Hope everyone had a great thanksgiving 🤎
Just wanted to give an update on what’s been going on with Elena health wise the last few weeks.
On Friday, October 3rd, Elena woke up and started having another seizure. 911 was called right away and Elena’s oxygen levels were low/her heart rate was very high while we waited for the ambulance and fire department to arrive. Firefighters arrived first and were able to give elena oxygen while she was still seizing. Shortly after paramedics arrived and they gave Elena two doses of a rescue medicine that helped her to stop seizing. She was non responsive and in her seizure for about 40 minutes.
Elena and I rode in the ambulance to the iwk together and she stayed there overnight for observation. While she was there, she had two more seizures called Absent seizures, that only lasted about 30seconds to a minute each. The doctors ran a few tests however there is still no signs as to why she’s having these seizures. Due to no evidence for why these seizures are happening she’s been diagnosed with epilepsy. She has been put on a medication twice daily to hopefully stop the seizures from happening however only time will tell.
Elena also went into the Iwk last week and has started working with their rehab team. At this appointment they diagnosed her with cerebral palsy. Cerebral palsy (CP) is a permanent brain disorder that affects movement and muscle coordination, appearing in infancy or early childhood caused by lack of oxygen to the brain. This diagnosis also scared me and seeing the words “there is no cure to CP” really took me a bit to process. Elena has had a few times in her medical history where she has had a lack of oxygen so this diagnosis does make sense as to why its taken her a longer time than we all thought for her to move around/walk. However the good thing is CP is a scale and the rehab team were very suprised by how well elena is doing with her movements and she even walked by herself infront of them which is bery encouraging. Elena scored much lower on the scale than they were expecting.
Elena is doing well since and has been happier than ever. I’ll admit it’s been tough on me, very hard to see Elena going through these seizures/medical complications and I ask for your prayers and positive thoughts for Elena, to keep her safe and healthy. Not knowing when this could happen again has been hard and these two new diagnosis will be something to get used to.
Through it all Elena has been incredibly strong and her laughter keeps me going through the tough days. I thank you all for your continued love and support 🤍
