Elena’s Journey

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Elena’s Journey

Elena was born with a rare birth defect called CDH. Follow along to see her miraculous journey

09/15/2025

Overcome with emotion today getting Elena ready to start her second week of pre kindergarten and realizing we are in the days that we prayed so desperately for years ago.

It’s easy to go day by day not realizing how far you’ve come, and this morning I was looking at Elena and saw the little baby girl who was fighting for her life in the iwk years ago. I remember all of you who kept Elena in your thoughts and prayers, I’m reminded of Elena’s amazing home nurses/iwk staff who helped watch over Elena as she slept who always kept her safe. I’m reminded of all Elena has overcome medically and all of the growth that has happened in our lives behind the scenes.

Again, I am so beyond thankful for you all who have always been so kind and amazing towards Elena. I love running into you guys while Elena and I are out and hearing how long you’ve been following Elena’s Journey and keeping her in your prayers❤️‍🩹 it means more to me than you know

09/08/2025

Elena had her first full day at pre kindergarten today🤍 This is such a huge change for her but she did amazing!
Her sweet teachers sent me pictures of her throughout the day and let me know how she was doing.
So proud of my little girl🤍🤍

09/03/2025

Elena’s first time in her new school 🤍

We went to her Prekindergarten open house this morning for her to meet her new teachers and get familiar with the space.

Her first full day of school is Monday. Please keep keep her in your thoughts and prayers as this is going to be a big adjustment for her, but it will be amazing for her development 🤍

08/27/2025

Hope everyone is having a great summer. Elena sure is 🤍
She’s still doing great and has been enjoying being outside in the sun ☀️

She starts Pre Kindergarten next week, time is flying by 🤍

08/04/2025

Now that Elena’s stoma (where the opening was from her trach) has closed over, I was finally able to take her to the beach this past weekend!

She quickly fell in love with the water and was even swimming with help a bit yesterday while visiting her great gram in Wallace. She also went on the ATV for the first time and she absolutely LOVED it!

What a beautiful amazing weekend showing Elena new things🤍 living in the days I prayed so much for while Elena was sick🤍

07/18/2025

And just like that, Elena decided to walk! She has taken little steps in the past by herself but has never walked like this before! She’s struggled with balance however the past few days she’s been taking more and more steps by herself and building her confidence. Forever greatful for little Elena 🤍

07/15/2025

Elena with her new wheels! Elena is going to Pre Kindergarten starting in September and due to her not walking fully by herself yet, she will need a wheelchair to get on and off the school bus. This is only her second time in a wheelchair but she took to it immediately! (The wheelchair is not long term, however due to the transportation rules she needs one for school. Still hoping and praying for her to be able to walk on her own in the near future). She of course had to have her snack on her lab while driving around as well.

07/02/2025

Hope everyone had a great Canada Day 🇨🇦

A little throwback to Elena’s first Canada Day in the hospital compared to yesterday when her and I were at the park.
So much has changed and she sure is growing🤍

06/13/2025

Elena has still not had any more seizures in the past two weeks which is such a huge blessing.

She’s been a very hapoy little girl🤍

I will ask for a prayer request for her, she hasn’t had much of an appetite since coming home from the hospital. Thankfully she has the feeding tube and I’m able to give her more nutrition through that, however would love to get her back up to mostly oral food.
Her sleep has also been insanely off but hoping that will settling in the coming week.

Thank you all for your continued prayers, positive thoughts, kindness and support❤️‍🩹

06/02/2025

Elena thankfully has been doing well. She has been a lot more tired since her seizure last Sunday but she’s getting lots of good rest while her body heals ❤️‍🩹

In other news, last week Elena and I moved and she’s adjusting to our new home really well!

Her cousins are up visiting from PEI and they have had lots of good laughs and fun this past weekend🤍

05/29/2025

Elena seizure update #5:

Yesterday afternoon Elena was discharged from the iwk and she was finally able to come home🤍

I am monitoring her closely. She had a great sleep last night and is currently having a nap now. She’s been more tired the last few days which is understandable but other than that she has been doing perfectly.

We will all definitely be on edge for the coming weeks hoping no other seizures occur. Thankfuly all of her brain scans showed no seizure activity ❤️‍🩹

Thank you all for your continued prayers and positive thoughts for Elena.

05/27/2025

Elena seizure update #4:

Elena had a great sleep last night and there has been no signs of another seizure so far.

Doctors don’t know why she had a seizure Sunday morning. Elena had brain scans, an MRI, bloodwork, urine samples taken, X-rays and everything came back completely normal and no signs of brain damage. Which is all great news.

We are still in hospital waiting to speak with a few specialists and also waiting for her to get a new G/J feeding tube as her old one broke. It’s looking like she will stay in hospital tonight, get the new feeding tube tomorrow and then go home tomorrow. However medically she has been doing great and is pretty much back to normal other than being a bit more sleepy than usual, which is expected after what she’s been through ❤️‍🩹

Thank you for all of your continued love and support towards sweet Elena, and I ask that you continue to send your prayers and positive thoughts her way🤍

Address

Halifax, NS

Website

https://www.gofundme.com/f/k3prvn-elena-needs-your-help?qid=c54bc81c3654dcb8a83466b726df8457

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