SPG4 Cure Fundraiser

SPG4 Cure Fundraiser Ottawa family fundraising to support research to treat and cure to Hereditary Spastic Paraplegia Type 4 (SPG4).

For more information on our story or to make a donation, please see our Canadian Charity: https://blugenes.org/spg4-cure/ Thank you!

A huge thank you to the Stittsville RAMS for bringing back the 3-on-3 Charity Ball Hockey Tournament and for supporting ...
09/26/2025

A huge thank you to the Stittsville RAMS for bringing back the 3-on-3 Charity Ball Hockey Tournament and for supporting local hockey families like ours. We’re incredibly grateful to our amazing community for rallying behind us in our fight against SPG4. 💙

If you haven’t registered yet, gather some friends and sign up—or simply come out to cheer! Your support truly makes a difference! 🏒

Facebook event link:
https://facebook.com/events/s/2025-revival-stittsville-3-on-/2826808564376345/

For more on our family’s story:
https://blugenes.org/spg4-cure/

Stittsville Minor Hockey Association Glen Gower - Councillor / Conseiller - Stittsville Allan Hubley - Councillor for Kanata South Papa John's Stittsville Ottawa, Ontario Ottawa Senators Centre Ice Sports Bar BTeamOttawa Mane West Salon

The countdown is on!🚨6 DAYS left to buy tickets! 🚨Purchase your tickets now if you are planning to join us for the comed...
09/26/2025

The countdown is on!

🚨6 DAYS left to buy tickets! 🚨

Purchase your tickets now if you are planning to join us for the comedy show fundraiser on October 9th at with hosted by ! We need to get our numbers in to the comedy club in just under 1 week!

We hope to see you there!

BTeamOttawa Mane West Salon Papa John's Stittsville Power-Tek Group Ottawa, Ontario Allan Hubley - Councillor for Kanata South Glen Gower - Councillor / Conseiller - Stittsville Jo-Jo's Pizzeria

🚨7 DAYS left to buy tickets! 🚨Purchase your tickets *now* if you are planning to join us for the comedy show fundraiser ...
09/25/2025

🚨7 DAYS left to buy tickets! 🚨

Purchase your tickets *now* if you are planning to join us for the comedy show fundraiser on October 9th at with hosted by ! We need to get our numbers in to the comedy club in just 1 week!

We hope to see you there!

Stittsville Minor Hockey Association Papa John's Stittsville Glen Gower - Councillor / Conseiller - Stittsville Allan Hubley - Councillor for Kanata South Power-Tek Group Ottawa, Ontario Ottawa Senators Mane West Salon BTeamOttawa

World HSP PLS Awareness Day is October 17th!     Cure SPG4 Foundation The Lilly and Blair Foundation Maurya Koduri Found...
09/24/2025

World HSP PLS Awareness Day is October 17th! Cure SPG4 Foundation The Lilly and Blair Foundation Maurya Koduri Foundation SPG4 Cure Fundraiser

09/17/2025

🎤✨ Laughs for a cause! ✨🎤

A comedy night fundraiser in support of Jack, who is bravely battling SPG4. 💙 Every ticket sold helps make a difference!

Contact Amanda to purchase your tickets.

PLUS - we’re giving away 2 free tickets 🎟️🎟️ to the show!
👉 To enter: simply share this post and help us spread the word.

Let’s fill the room with laughter, love, and support for Jack! 💪💙

09/14/2025
The inaugural Chelly hockey tournament fundraiser was an incredibly special event for our family and especially for Jack...
09/14/2025

The inaugural Chelly hockey tournament fundraiser was an incredibly special event for our family and especially for Jack. We felt all of the love and support from everyone who participated and came out to join us for this event. Thank you, we are so grateful to you.

A big huge thank you to all of the organizers of this event for making it happen, including our friends Marc and Chelsea, Angelo and Josie, Cinnani Construction inc, BV labs, Centre Ice Sports Bar and the Sensplex, Erik Hobbins, and to all of the donors for the live auction!!

Thank you to Allan Hubley - Councillor for Kanata South and to Eric Cumberbatch from the Ottawa REDBLACKS for coming out to support Jack!

Because of all of you, we are one step closer to the SPG4 Cure.

‼️Jack’s Skate is TODAY!‼️🏒Please join us at the Kanata Sensplex Myers Rink at 3-3:50 pm today! Jack would love to see y...
09/09/2025

‼️Jack’s Skate is TODAY!‼️

🏒Please join us at the Kanata Sensplex Myers Rink at 3-3:50 pm today! Jack would love to see you on the ice with him! We hope to see you there!

🥅This event is FREE and there is NO need to register! Just bring your helmet and skates!

🍕FREE pizza for kids at the Centre Ice Sports Bar to follow this event!

Stittsville Minor Hockey Association Papa John's Stittsville Glen Gower - Councillor / Conseiller - Stittsville Ottawa Senators Power-Tek Group Allan Hubley - Councillor for Kanata South Centre Ice Sports Bar

Address

Ottawa, ON

Website

https://gofund.me/f7f8f8f8, https://give.rarevillage.org/For-Jack, https://spg4curefund

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