Matthews Journey

01/18/2026

01/29/2025

These are the impacts of your body, when you are a victim of Duchenne muscular Dystrophy. It's a debilitating disease that is relentless and does not stop until there is no muscles left to attack.

Being a rare disease, most of the treatment required is not covered by any of the services in Canada. So, if you're able, please drop some bottles off for Matthews account with our friends at Riverview Bottle Exchange

Thank you everyone for your ongoing support !

01/28/2025

This morning, as Addison and Matthew walked into school, I watched as Addi waited for him to catch up to her at the stairs into the school, and she took him by the arm and guided him up the stairs to make sure he didn't fall. It took me back to this moment, and it reminded me his sister will always be there for him, and is one of his number one advocates, even at such a young age. As a parent, we're always wondering if we are making the right choices for our children. I may have made a lot of mistakes, but this definitely isn't one of them 💕 so proud of you my girl. You are always everyone's number one caretaker, you always make sure everyone has everything they need, and you're always one of the first ones to volunteer to help anyone in need. You may think you're a teenager at 9 years old, and we may bump heads a lot, but you are absolutely a rainbow on a cloudy day, a breath of sunshine after every storm. Don't ever change addi 💕.

01/28/2025

Artwork provided by the lovely Sonia 💕

01/27/2025

This year's Walk & Roll for Muscular Dystrophy Canada is scheduled for May 10th!

Muscular Dystrophy Canada funds research for neuromuscular diseases and aids families with equipment and other needs.

This will be the first year Matthew attends the event. Normally it's just the adult members of

With that being said, Team Matthew now only consists of me 😂 so if anyone is interested in helping fundraise and attend the walk, just let me know !

01/23/2025

Matthew with his bubble gun, 3D printed at Stan Cassidy and customized with a button instead of a trigger.

Just a reminder that you can donate recyclables to raise funds at Riverview Bottle Exchange under Matthews Journey.

Thank you for your support !

01/20/2025

Matthews medication finally arrived, after being ordered from Germany on November 13th.

Now we move back to the major issue at hand. Victims of rare disease in this country need more support.

$470 with absolutely no coverage from insurance or the province. In a civilized country like Canada, no one should have to choose between feeding their family or keeping their child's heart beating. Fortunately for us, our family and community would never let that happen, but not everyone is as fortunate as we are.

We are putting an end to the pop tab collection for Matthews medical devices, due to the metal prices it's unfortunately no longer a worthwhile method. If you're looking to help, we are switching our campaign to recyclables. There is an account at Riverview Bottle Exchange under Matthews Journey.

We want to thank Audrey and all the staff at Riverview Bottle Exchange for all of their support during an extremely debilitating time for our family.

09/26/2024

Imagine being born with a best friend, and watching them struggle, but at the same time being compassionate enough to help. You're a brave girl and we're proud of you for taking care of your brother.

09/25/2024

Hope is what they say you need in light of a vicious disease. Meanwhile, my son has a unique mutation of Duchenne that has never been reported before. (DMD c.4518 +5G>T) Yet, we have no interest from anyone in the medical community. My little boy is slowly heading towards his grave, and absolutely no one has an interest in finding a solution.

It's an assumption that if you have a Medical anomaly the medical field will be highly interested. That's simply not true.

Meanwhile I face the horrific experience of watching this all fold out with no hope in the world. Absolutely no one to take charge and figure out some moves to make.

In the interm, I have to figure out how to buy a $6000 manual wheelchair, knowing in a year we have to turn around and pay $20-30000 for a motorized wheelchair, a long with a hitch for my car and a trailer to transport it. They tell me my house is not accessible, so at the same time they want me to figure out somewhere else to live in this economy.

Life is not fair. Charity starts at home, meanwhile we can't support the families we already have on our soil. My little boy is going to lose his battle if something doesn't change... Please if anyone has any suggestions, let us know... Please... We're absolutely desperate... Follow for updates 💕