Total Situs Inversus With Dextrocardia

09/04/2019

https://amp.cnn.com/cnn/2019/04/08/health/99-year-old-backward-organs-medical-oddity/index.html

Oregon medical students were shocked and surprised when they opened the cadaver of Rose Marie Bentley.

07/05/2017

Situss inversus mum's please help Christina
Good afternoon, a question for the situs inversus mothers: did you have any problems with breastfeeding? Then, more in general, has anyone experienced cephaleas with flashing lights, depression or feels he/she gets tired sooner than the rest of people? Thanks, cheers.

21/01/2017

Welcome to our page Sharon x

23/04/2016

The link for a patient having a heart transplant who has dextrocardia situs inversus

07/03/2016

HAS ANYONE COME ACROSS THIS

Hi, my 15 month old daughter has Total Situs Inversus with Dextrocardia and was diagnosed at 5 days old when a chest X-ray showed her heart was on the right. She was then scanned and situs inversus totalis was confirmed. She was quite the celeb in hospital as none of the doctors had seen the condition diagnosed so young. She does not have any heart defects so we carried on life as normal. However I took her to hospital Friday as she had a raging temperature and very fast breathing. Ear and chest infections were confirmed however she was kept in as research is now showing children with situs inversus statistically have a higher risk of bacterial sepsis (thankfully I was clued up on symptoms due to recent media reports). We are now being referred for immunity testing as there is a chance her spleen is not working 100% which is why she maybe picks up infections easier and needs a bit more help to get rid of them. I just wondered if anyone else has gone through these blood tests or has any insight? The doctors seem to be learning on the job as there are still not a huge amount of people (especially young babies/children) diagnosed with the condition it would seem. Look forward to hearing some of your experiences xx

02/01/2016

Still looking for people for research x

Hi everyone just received a message from a doctor who's currently studying dextrocardia. They're looking for people aged 12 and over to have an MRI scan at the Royal Brompton Hospital in London England so if anyone is interested in going for the scan you can get contact details from the advert or if it's not viable message us and we can pass the details along.
My son will be attending and anything we learn from it will be posted on here.
THE MORE THE DOCTORS KNOW THE MORE WE KNOW !! (Helen) x

02/01/2016

Hope everyone's had a great Christmas and New Year stay healthy ###

05/10/2015

We still need people for research. Anyone interested in helping us learn more about the condition please contact us and ill pass your details over to the Dr to contact you.
Travel expenses will be reimbursed ie train fare, bus fare petrol x

Hi everyone just received a message from a doctor who's currently studying dextrocardia. They're looking for people aged 12 and over to have an MRI scan at the Royal Brompton Hospital in London England so if anyone is interested in going for the scan you can get contact details from the advert or if it's not viable message us and we can pass the details along.
My son will be attending and anything we learn from it will be posted on here.
THE MORE THE DOCTORS KNOW THE MORE WE KNOW !! (Helen) x

24/09/2015

Received a message to ask if anyone in the group has scoliosis (bending of the spine) as well ??? X

21/09/2015

Well done to my son Connor for spending over 2 hours in the MRI scanner. I've got to say it was amazing to be able to see all photos afterwards and to be shown how everything work's.
Hopefully we'll get the results after everything's been analysed.
Anyone else who has dextrocardia or situs invursus would like to help with research and can get to the Royal Brompton Hospital in South Kensington message me and ill pass over the contact details all travel expenses will be reimbursed x

16/09/2015

Hi everyone just received a message from a doctor who's currently studying dextrocardia. They're looking for people aged 12 and over to have an MRI scan at the Royal Brompton Hospital in London England so if anyone is interested in going for the scan you can get contact details from the advert or if it's not viable message us and we can pass the details along.
My son will be attending and anything we learn from it will be posted on here.
THE MORE THE DOCTORS KNOW THE MORE WE KNOW !! (Helen) x

14/09/2015

Anyone with totalis have intestinal mal rotation?

14/09/2015

BBC 2 at it best. A great explanation of Total Situs Inversus with Dextrocardia. If you get chance on iPlayer please watch it. http://www.bbc.co.uk/programmes/b06cl24s

How a single cell transforms in the first eight weeks after conception.

29/08/2015

Hi there, can some one help Carol Askey out please? Thanks in advance Kate.

Hi I have TSIWD and one year ago I was lucky to have surgery for the removal of a myxoma
I would like to know if anyone else has had this condition?

15/06/2015

Can anyone help ??? 😊

Hi I was wondering if you could please post on tha page to ask if anyone has SItus Inversus with Levocardia please? I'm struggling to find anyone with the condition. My 3yr old son has it and I'd just love to speak to others with it too? Thanks

Levocardia is a medical condition where the heart is on the correct side of the body (the left), but the related structures are on the wrong side, either due to corrected transposition of the great vessels or to situs inversus.

07/04/2015

Hi everyone, apologies for not being on here much I've been looking after my dad who sadly passed away a few weeks ago.
But I'm back and hoping to keep myself busy with the group and work.
We have a new member Mardie who's looking to talk to someone who has SIT and ASD Mardie has to have surgery so if anyone has the same conditions please advise x

08/01/2015

Can anyone help Crissi out please or know of a support group in the US? Thanks Kate.

This group seems mostly focused on awareness in the UK, does anyone know of anything being done in the US to promote awareness?

My daughter is 6 months w/total situs inversus with dextrocardia and she will be going for some genetic testing in a couple of days. She's failed 8 hearing tests and had tubes put in about a month ago, still waiting to do another test to rule out any hearing loss. She also always seems to be congested, since birth so I'm concerned about PCD. I found out about her condition when I was around 20 weeks pregnant and couldn't find much to learn more about it.

That's her getting her first echocardiogram @1 day old