Fibromyalgia & ME Wellbeing Norwich with Chrissy Squire

16/06/2024

Help for people with M.E/Chronic Fatigue Syndrome, Fibromyalgia, POTS and Post Viral Fatigue who want to get better, improve their health and quality of life.

02/10/2023

I saw this on Dragons den on Friday and loved that it is all recyclable. Ordered at 8.45pm and it was delivered today. Such a lovely smell and I’m excited to use it. https://fussy.mention-me.com/m/ol/wl6ne-christine-squire

05/08/2023

27/11/2021

WHILE having long Covid has meant quite a significant change of lifestyle for Lisburn man David Mayers, there has been one 'positive' to come out of the 20-month-long experience.

24/11/2021

New NICE Guidance of ME/CFS Published

On the 29th October NICE published the long-awaited updated guidance on the diagnosis and management of ME/CFS. These new NICE guidelines are the result of a thorough consultation process, which aimed to consider both the scientific evidence and also the ‘lived experience’ of those with ME/CFS.​
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The OHC was delighted to have an opportunity to be part of the consultation process on this new ME/CFS guidance and we are so pleased that the guidance recognises ME/CFS as a complex and chronic medical condition, with the potential to exert a profound impact on daily life. ​
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The revised guidance also acknowledges the fundamental importance of remaining within the ‘energy envelope’ and pacing effectively – this is of course a concept that OHC have incorporated into our protocols for many years. The most significant and welcome development though, is the removal of all recommendations for Graded Exercise Therapy (GET) as a treatment for ME/CFS patients.​
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For more information you can read the new NICE guidelines here: https://www.nice.org.uk/guidance/ng206

18/11/2021

As with fibro flares, those of us with CFS will also cycle into chronic fatigue syndrome symptoms due to stress, weather, trauma, or lowered immune resistance.

17/11/2021

A doctor who doesn't believe she is ill - Doctors with M.E.

13/11/2021

Rest rest rest

17/06/2020

In case anyone is concerned about wearing a Face mask

Latest advice 15th June 2020 on wearing a face mask.

Can’t wear a mask?

Worried about travel?

Download this PDF template and cut out one of the cards to show. Each card explains a different reason why it’s ok for you to not wear a mask.

https://static1.squarespace.com/static/5e74a4169b3712658a63f54f/t/5ee7e0a84855790a4344c694/1592254634670/Mask-Exemption-Cards.pdf

18/03/2020

New Government guidance has been issued that will affect people with ME/CFS.

31/01/2020

"Today was a Difficult Day," said Pooh.

There was a pause.

"Do you want to talk about it?" asked Piglet.

"No," said Pooh after a bit. "No, I don't think I do."

"That's okay," said Piglet, and he came and sat beside his friend.

"What are you doing?" asked Pooh.

"Nothing, really," said Piglet. "Only, I know what Difficult Days are like. I quite often don't feel like talking about it on my Difficult Days either.

"But goodness," continued Piglet, "Difficult Days are so much easier when you know you've got someone there for you. And I'll always be here for you, Pooh."

And as Pooh sat there, working through in his head his Difficult Day, while the solid, reliable Piglet sat next to him quietly, swinging his little legs...he thought that his best friend had never been more right."
A.A. Milne

Sending thoughts to those having a Difficult Day today and hope you have your own Piglet to sit beside you 🧡

14/11/2019

18/07/2019

http://www.fibromyalgiasupport-norfolk.co.uk/uploads/1/2/5/9/125987219/me_and_cfs_recovery.pdf

18/07/2019

http://www.fibromyalgiasupport-norfolk.co.uk/events.html

Meetings planned:- Tuesday, 16th July 2019 at 1.30pm to 3.30pm - social meeting at Notcutts Garden Centre, Daniels Road, Norwich, NR4 6QP. This is an informal meeting as it takes places in a cafe. We...

30/04/2019

I'm recovering xx

Exactly. ❤️

11/04/2019

The four key fibromyalgia symptoms are: widespread body pain, unrelenting fatigue, cognitive issues or brain fog, and unrefreshing sleep.

However, fibromyalgia never comes by itself. There are usually lots of other things that happen with it: digestive issues, headaches, thyroid issues, adrenal issues, sleep conditions, and all kinds of other stuff.

When you were diagnosed, how many of these symptoms did you have? Or if you haven't been diagnosed, are you experiencing any of these?

I go more in depth about getting diagnosed in Episode 4 of the Fibromyalgia Podcast. Check it out here: https://FibromyalgiaPodcast.com/4

26/01/2019

Has anybody tried melatonin?

FIBROMYALGIA can have a devasting impact on sufferers’ lives. The chronic pain condition, which celebs like Lady Gaga, Kirsty Young and Sinead O’Connor have, has no treatment – …

13/01/2019

I am definitely Hibernating

Nothing happens in your body without some of your genes going off like sky-rockets. If your body is responding to something – or acting differently in some way – it should show up in a different pattern of gene expression. If you get a virus, for instance, the virus will …