Evie Squeezie’s Journey

Evie Squeezie’s Journey Hi everyone im Evie (Squeezy) i was born on 08/04/25.

I have Trisomy 21, complete AVSD and Hirschsprungs disease and Mummy and daddy set up this page for my friends, family and everyone inbetween to follow my journey through life, and all its hurdles 🩷

25/02/2026

Evie's getting stronger by the day 💪🏻 she couldn't hold her head up last week now look at her 🩷

She's living proof!! 🩷
24/02/2026

She's living proof!! 🩷

19/02/2026

Change of plan 🙄 Evie won't be having surgery Tomorow now because the surgeons feel it's too soon after being on ECMO they want her to have more time to recover before they do the surgery she's now penciled in for beginning of March

Evie is all prepared for her Open heart surgery on Friday, her little gown and pjs were made especially for her by Pyjam...
18/02/2026

Evie is all prepared for her Open heart surgery on Friday, her little gown and pjs were made especially for her by Pyjama fairies 🥹 she has just had her pre op Echo and ECG and she will have some bloods done then it's all go for Friday morning, First on the list 😬 Evie Squeezy the Bravest little Heart warrior 💪🏻

So.......We have a date for Evie's OHS 🥺 Friday, yes THIS FRIDAY!! I don't really know what else to say at the moment?
17/02/2026

So.......We have a date for Evie's OHS 🥺
Friday, yes THIS FRIDAY!! I don't really know what else to say at the moment?

Someone's been feeling and looking much better today 🥰 we are soo happy our Special girl is BACK! ❤️💪🏻
14/02/2026

Someone's been feeling and looking much better today 🥰 we are soo happy our Special girl is BACK! ❤️💪🏻

Evie's face when she heard the news about Graduating to 1C 😩😍🥹
13/02/2026

Evie's face when she heard the news about Graduating to 1C 😩😍🥹

13/02/2026

Change of plan, Evie is bypassing HDU and going to the ward instead 👏❤️

Evie is currently off high flow to see how she goes 🤞 and she is stepping down to HDU 👏 Come on girl, keep smashing it ❤...
12/02/2026

Evie is currently off high flow to see how she goes 🤞 and she is stepping down to HDU 👏 Come on girl, keep smashing it ❤️

Look at our Brave girl ❤️ she has been extubated this morning and is doing well, she looks tired but she's refusing to g...
10/02/2026

Look at our Brave girl ❤️ she has been extubated this morning and is doing well, she looks tired but she's refusing to go to sleep 🤣 she wasn't too keen on a cuddle but I won't take it personal as she's had a busy day I'll let her off. She's improving everyday so il take that as a win!

Our amazing little warrior is 10 month old today ❤️ a pic of her before she was poorly 🥹
08/02/2026

Our amazing little warrior is 10 month old today ❤️ a pic of her before she was poorly 🥹

07/02/2026

Our Squeezy is being tried on the step down from the ventilator tomorow on the CPAP and if she does well on that they plan to extubate her on Monday 🤞👏 massive middle finger to RSV 🖕🏻Evie is WINNING this fight 💪🏻❤️

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