Evie Squeezie’s Journey

Evie Squeezie’s Journey Hi everyone im Evie (Squeezy) i was born on 08/04/25.

I have Trisomy 21, complete AVSD and Hirschsprungs disease and Mummy and daddy set up this page for my friends, family and everyone inbetween to follow my journey through life, and all its hurdles 🩷

Here we are for our weekly visit to Alder hey (our 2nd home) for Evie's bloods 🙄 they have been in range the past 2 week...
23/04/2026

Here we are for our weekly visit to Alder hey (our 2nd home) for Evie's bloods 🙄 they have been in range the past 2 weeks so let's hope they still are 🤞

Evie approves of her new wheels and so does Mama 😍 the last buggy I bought she just looked so uncomfortable in so here w...
21/04/2026

Evie approves of her new wheels and so does Mama 😍 the last buggy I bought she just looked so uncomfortable in so here we are...New pram day! 👏

Not much to update at the moment, Evie is doing so well at home 🥰 here are some Squeezy smiles to cheer you up 🩷
19/04/2026

Not much to update at the moment, Evie is doing so well at home 🥰 here are some Squeezy smiles to cheer you up 🩷

Evie has had a physio session today finally, our physio has ordered her a squiggle mat and doing a referral for OT and h...
13/04/2026

Evie has had a physio session today finally, our physio has ordered her a squiggle mat and doing a referral for OT and hopefully get a tomato chair to support with her sitting while we start trying to wean as I don't feel the high chair is supportive enough at the moment with her low tone and the fact she has had a bit of a delay from working on building her strength up. Hopefully these aids will help and support her to make progress but overall Physio were happy with her 🩷

Trying to get Evie to sit is not easy, as soon as I put her in a sitting position she rocks 🤣
10/04/2026

Trying to get Evie to sit is not easy, as soon as I put her in a sitting position she rocks 🤣

Happy First Birthday to our Amazing girl 🥹 Thankyou to everyone who came and who brought her cards and gifts she's been ...
08/04/2026

Happy First Birthday to our Amazing girl 🥹 Thankyou to everyone who came and who brought her cards and gifts she's been so spoilt off you all 🥰

Happy Easter from Evie Squeezy 🐰🩷
05/04/2026

Happy Easter from Evie Squeezy 🐰🩷

Evie's little pigtail 😩🤣
03/04/2026

Evie's little pigtail 😩🤣

Some cheeky ones too 🥰
02/04/2026

Some cheeky ones too 🥰

Evie has settled right back in at home 🥰
02/04/2026

Evie has settled right back in at home 🥰

10 weeks today Evie has been in Alder hey and today is the day we finally got to take her HOME 🏡 ❤️
30/03/2026

10 weeks today Evie has been in Alder hey and today is the day we finally got to take her HOME 🏡 ❤️

I wish I was writing we are coming home but we're not 🙄 Evie's bloods are not playing ball, we need them to be in range ...
26/03/2026

I wish I was writing we are coming home but we're not 🙄 Evie's bloods are not playing ball, we need them to be in range for her to be able to come home on a certain medication, the bloods today are not in range so we have to wait 3 doses until they test it again which takes us to tomorrow night so potentially home Saturday if her bloods are right 🤞 as you can see from Evie's face she's literally NOT ARSED! 🤣😩

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Preston

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