Haemophilia Society of Singapore

20/05/2026

🎬 HSS Movie Premiere Fundraiser 2026

HSS is hosting our annual film fund raiser this July with a special screening of Minions & Monsters in support of the haemophilia community here in Singapore.

Beyond medical care, many families continue to navigate the less visible realities of living with haemophilia - school, work, independence, travel, and the ongoing mental and emotional load of living with a chronic illness.

This is reflected in many within our community, including Irfan, a young aerospace engineering student living with severe haemophilia. As he works through his studies, he has to manage treatment, caution, and a part-time job to help cover the cost of his treatment... in addition to the everyday realities of growing into adulthood.

This is the space HSS is expanding our focus to: strengthening not just clinical outcomes, but also the ability of individuals and families to navigate school, work, independence, and daily life with greater confidence and less isolation.

🎬 Movie: Minions & Monsters (PG)�
📅 Date: Sunday, 12 July 2026 (est. start time 2-3pm, tbc 2 weeks prior)�
📍 Venue: Shaw Theatres Lido, 350 Orchard Road, Singapore 238868

We welcome contributions through donation tiers of $50 / $100 / $200, with each contribution including movie admission and a popcorn combo as a token of appreciation. If you would like multiple tickets, please email us at haemophilia.sg@gmail.com

How to Donate:
PayNow – UEN: S85SS0047A (Haemophilia Society of Singapore)
Alternatively, via our giving.sg campaign page: https://www.giving.sg/donate/campaign/hss-film-screening-2026

All proceeds from the charity film screening go directly to supporting treatment costs.

Thank you for supporting a stronger, more connected community!

Read Irfan’s story here: https://www.channelnewsasia.com/today/voices/haemophilia-student-paper-cut-bleed-profusely-full-life-rare-blood-condition-6060156

20/05/2026

Hear Melvin and Kheng Chew share their perspectives of growing up with Haemophilia across different generations in 🇸🇬 on MSN!!

13/05/2026

✈️ Planning to travel? Join us for a practical webinar for patients, caregivers, and families with haemophilia.

Whether it’s a short holiday, school trip, or business travel, preparing ahead can help reduce stress and make travelling more manageable and enjoyable.

In this short session, we’ll cover practical topics including:
🩸 Medication planning
📄 Travel letters & documentation
🛄 Airport and security considerations
🚑 Emergency planning abroad
💬 Tips from lived experiences

📅 Thursday, 28 May 2026
🕕 6:00 PM – 7:00 PM (GMT+8)
💻 Online via Zoom

We also warmly welcome members of the haemophilia communities in Malaysia 🇲🇾 and Brunei 🇧🇳 in our inaugural joint session (with hopefully more to come!), and look forward to learning together across the region.

👉 RSVP here: https://calendar.app.google/3R6FETmNH5AGVdP16

05/05/2026

Great perspective from The Wellness Insider following the launch of our Living with Haemophilia in Singapore 🇸🇬 report last month!

A new national study reveals how people living with haemophilia in Singapore face mobility challenges, mental load and caregiver strain — and why holistic support matters.

04/05/2026

🌏 Learning, sharing, and bringing it home 🇸🇬

Last week, members of the haemophilia community from Singapore were in Kuala Lumpur for the World Federation of Haemophilia global Congress.

It was great to see strong representation from across our healthcare system - clinicians and therapists from SGH, KKH, and NUH - alongside a small HSS delegation from our ExCo and members.

Across the few days, the breadth of conversations was striking. From medical and musculoskeletal care, to dental, nursing, and laboratory sciences, alongside important discussions on psychosocial support, and women and girls with bleeding disorders.

But beyond the sessions, what stood out was the opportunity to connect with other patient groups, especially from across Southeast Asia.

In Singapore, we’ve made real progress in access to diagnosis and treatment. But just a few hours away, many are still facing much more fundamental challenges - late or missed diagnosis, limited access to treatment, and in a number of cases a dependence on humanitarian aid.

Despite our differences, there was still a lot of that felt similar. The desire to live a “normal” life. The daily trade-offs people make. The quiet but constant burden carried by caregivers. And the role that community plays in making all of this a little more manageable.

These exchanges matter. They help us see both how far we’ve come, and where we can continue improving. Not just in treatment, but in how people are supported to live, study, and work with confidence 💪🏼.

29/04/2026

The World Haemophilia Day 2026 event took place in Singapore on Saturday, 25th April 2026. Centred around the theme "BUILDING AN ACTIVE COMMUNITY TOGETHER," the event brought the local community together for an inspiring morning of shared insights and practical wellness tips to foster a stronger and more active future.

Attendees were treated to two specialised talks from notable experts in the field of haemophilia and physical therapy:

Dr. Glenn F. Pierce, MD, PhD delivered a presentation titled "My Journey Through the Evolution of Haemophilia Care". Dr. Pierce brought a deeply personal perspective to his talk, having been born with severe haemophilia A and subsequently cured in 2008. Beyond his lived experience, he is a globally renowned physician-researcher with over 30 years of experience in biotech drug development, specialising in tissue regeneration and hematology. He has been instrumental in the development of up to six different therapies for haemophilia and is a dedicated patient advocate who spearheaded a WFH humanitarian aid collaboration that facilitated the donation of 1 billion international units (IUs) of clotting factor to patients in lower-income countries.

Ms. Chong Kar Huey, MMP led a practical session focused on "Safe Stretching and Stability Exercises for Haemophilia". Ms. Chong is a Principal Physiotherapist at the National University Hospital (NUH) and holds a Master in Manipulative Physiotherapy from The University of Melbourne. Her presentation drew upon her extensive clinical and research expertise, which centres on musculoskeletal pain, orthopaedic and sports rehabilitation, and telerehabilitation for musculoskeletal disorders.

Attendees also enjoyed the Beads Station and interacting with each over over lunch.

The event was organised by the National University Hospital with the broad collaborative effort involving several major healthcare and support institutions: Singapore General Hospital, SingHealth, Singapore National Haemophilia Treaters Group, KK Women's and Children's Hospital and the Haemophilia Society of Singapore.

*Photos of the event were kindly shared by attendees. Thank you.

24/04/2026

A quick reminder that we’ll be coming together as a community tomorrow morning for World Haemophilia Day 2026.

It’s a simple but meaningful morning to hear from Dr Glenn Pierce (World Federation of Haemophilia) 💬 and to spend time with others in the community.

📅 Saturday, 25 April
🕘 10:00 AM – 1:00 PM (registration from 9:30 AM)
📍 YWCA Fort Canning

Whether you’re living with haemophilia, supporting someone, or part of the wider care community—we’d love to see you there.

17/04/2026

What does living with haemophilia really look like? That’s what we set out to highlight 🔍.

At our recent launch of the “Living with Haemophilia in Singapore: Care, Lived Experiences, and Outcomes” white paper, we heard directly from those at the heart of the community. They shared their journeys, hopes, and what a “haemophilia-free mind” means to them.

From navigating daily realities to dreaming about the future, the voices of people living with haemophilia, their caregivers, and the medical community remind us that progress goes beyond treatment, to include holistic well-being and a life lived fully.

As we mark World Haemophilia Day today, here’s to continuing the journey towards greater freedom and more possibilities for those living with haemophilia in Singapore! 🎉

Read the report here:https://haemophilia.org.sg/wp-content/uploads/2026/04/HSS-Living-with-Haemophilia-2026.pdf

10/04/2026

HSS made today's news!

血友病是血液无法正常凝固的罕见疾病，本地大约有280名患者，固定医药费加上额外费用对其中一些人构成沉重负担，所承受的心理压力也很大。

09/04/2026

09/04/2026

📢 Launching: Living with Haemophilia in Singapore

Ahead of World Haemophilia Day, we’re so proud to share the “Living with Haemophilia in Singapore: Care, Lived Experiences, and Outcomes” white paper.

Over the years, Singapore has made significant progress in haemophilia care and clinical outcomes. Because of that progress, we’re now able to ask a different question — not just how people are treated, but how they are actually living ♥️

Beyond treatment lies a deeper story: one of constant planning, unseen trade-offs, and a resilience that often goes unrecognised. This study brings those lived experiences — of persons with haemophilia (PwH) and their caregivers — into clearer view, while also pointing to what more can be done.

As care evolves, so do aspirations to reduce the mental load, have greater freedom in daily life and, ultimately, move beyond just bleed management, and towards participating and contributing to society more fully.

Here’s to working with partners and the community to turn these insights and aspirations into meaningful action! 🚀

👉 Explore the study:https://haemophilia.org.sg/wp-content/uploads/2026/04/HSS-Living-with-Haemophilia-2026.pdf