04/05/2026
🌏 Learning, sharing, and bringing it home 🇸🇬
Last week, members of the haemophilia community from Singapore were in Kuala Lumpur for the World Federation of Haemophilia global Congress.
It was great to see strong representation from across our healthcare system - clinicians and therapists from SGH, KKH, and NUH - alongside a small HSS delegation from our ExCo and members.
Across the few days, the breadth of conversations was striking. From medical and musculoskeletal care, to dental, nursing, and laboratory sciences, alongside important discussions on psychosocial support, and women and girls with bleeding disorders.
But beyond the sessions, what stood out was the opportunity to connect with other patient groups, especially from across Southeast Asia.
In Singapore, we’ve made real progress in access to diagnosis and treatment. But just a few hours away, many are still facing much more fundamental challenges - late or missed diagnosis, limited access to treatment, and in a number of cases a dependence on humanitarian aid.
Despite our differences, there was still a lot of that felt similar. The desire to live a “normal” life. The daily trade-offs people make. The quiet but constant burden carried by caregivers. And the role that community plays in making all of this a little more manageable.
These exchanges matter. They help us see both how far we’ve come, and where we can continue improving. Not just in treatment, but in how people are supported to live, study, and work with confidence 💪🏼.
