Haemophilia Society of Singapore

27/11/2025

Thank you for celebrating 40 years with us! 🎉

We had an amazing turnout at our 40th Anniversary Lunch on Saturday 15h Nov., when 80 members of our community came together: patients, caregivers, doctors, nurses, partners, donors, and former committee members. Your presence made this milestone truly meaningful.

A few highlights from the day:
📊 Our president Gerald shared the interim findings from the survey on unmet-needs, covering challenges across all life stages and the realities faced by caregivers
🌳 The Gratitude Tree filled with people's messages reflecting on how far we've come over the past 40 years
📦 2035 Time Capsule where participants dropped their hopes and wishes for our community over the next decade - sealed in a box to be opened in 10 years at HSS' 50th Anniversary in 2035
📸 Fun & Fellowship with photo booth snapshots, bingo, and a lucky draw—lots of smiles and great moments!

We were also honoured to hear from the WFH Regional Manager, Hazri Aris, who highlighted HSS’s role in the wider regional context.

A big thank you to everyone who joined, shared your stories, and made the celebration special. Here’s to the next 40 years of supporting families living with haemophilia in Singapore! ❤️

10/11/2025

Sweet Surprise at Our 40th Anniversary Lunch! 🎂

We're delighted to share that Agnes and Josephine will be bringing their delicious "Franconakan" (French with a Peranakan twist) baked goods to our 40th Anniversary Lunch this weekend!

For those who know their amazing treats, you'll be excited to hear that they'll have their goodies available at the event itself - a sweet way to support HSS while celebrating our milestone together!

All proceeds go towards supporting families living with haemophilia in Singapore🙏🏼

Pre-order and pickup in Dec., or look out for their yummy treats at the registration area before lunch - your taste buds (and our community) will thank you! 😊

24/10/2025

🩸 We want to hear from you!

The Haemophilia Society of Singapore (HSS), together with Blackbox Research and Roche Singapore, is conducting the final phase of our Patient Experiences Study to better understand the experiences and unmet needs of people living with haemophilia and their caregivers.

We want to have as many views as possible represented, so the online survey is open to everyone in Singapore who either lives with haemophilia or cares for someone who does, regardless of whether you are an HSS member or not.

✅ Open to: People with haemophilia and caregivers in Singapore
🎁 Token of appreciation: S$20 Grab e-voucher, emailed within 4–6 weeks
🕒 Duration: Around 10 minutes
🔒 Participation is voluntary and fully anonymous
👉 Take the survey here: https://link.blackbox.com.sg/RocheHSSQuant

Your voice will help us build a clearer picture of the challenges and support needs within Singapore’s haemophilia community. Every response makes a difference ❤️

22/10/2025

JOIN US FOR OUR 40TH ANNIVERSARY LUNCH! 🎉

The Haemophilia Society of Singapore warmly invites you to celebrate this special milestone with us!

After 40 years of supporting families living with haemophilia in Singapore, we're bringing our community together for an afternoon of food, fellowship, and festivities.
📅 Date: Saturday, 15th November 2025
⏰ Time: 12 Noon - 3pm (Registration starts at 11.30am)
📍 Venue: YWCA Fort Canning Lodge, Peace Room

Good news for our members: Members and one guest attend FREE OF CHARGE!

This is a wonderful opportunity to connect with our HSS family, reflect on our journey together, and celebrate the community we've built over four decades.

Registration closes 2nd November 2025 - don't miss out!
https://forms.gle/Mo9fpNiMTuaBZa5j7

We look forward to celebrating with you!

29/09/2025

Thank you for joining us at the HSS AGM 2025! 🙏

Great to see so many of you — both in person and online — at our very first blended AGM yesterday.

Some key highlights from the day:
✨ Dr Yap (NUH) gave an inspiring update on the incredible progress in haemophilia treatment options, from extended half-life factors to non-factor therapies through to gene therapy.
✨ Several years of hard work engaging regulators has finally resulted in prophylactic care now being covered under Medishield and Medisave, significantly reducing the financial burden on families.
✨ The evolution of HSS from primarily providing financial subsidies to also focusing on advocacy and community-building for people with haemophilia and their caregivers going forward.

Here’s to a new chapter for HSS, and thank you again for being part of the journey with us!

22/09/2025

THANK YOU! 🎸❤️

What an unforgettable afternoon! Red Prawn lit up The Blackbird — and our hearts — with a powerhouse performance.

Huge thanks to:
🎵 Red Prawn – Tomas, Grace, Alex & Ari. You didn’t just play music, you gave us a memory. Your talent and spirit made this truly special

👏 Carolyn – our behind-the-scenes heroine sorting out everything from logistics to merch

🏠 The Blackbird – for the excellent venue and the warm hospitality

🙌 Everyone who came out – you filled the room with love, sang along, and reminded us how powerful community can be

This is community in action: young people sharing their gifts, friends rallying around a cause, and everyone leaving with full hearts (and maybe a croc pin or two 😉).

Together, we raised >$1700 🙏🏼 for HSS programs supporting families living with haemophilia.

Thank you for making this Sunday one to remember!

The Blackbird Singaporeent

16/09/2025

Sunday can’t come fast enough! ⏱️

Red Prawn takes the stage for HSS this weekend on the 21st Sept, 3-5pm at The Blackbird. Come for the music, stay for the cause.

Bring your friends - let’s make this special for both the band and our community!

08/09/2025

Behind the scenes: Red Prawn deep in practice mode for HSS! 🎸

If you've ever slow-danced to The Police, gone a little crazy over Queen classics, or felt emotional about bridges (of the RHCP kind), you're going to love this setlist.

Sunday 21st Sept at The Blackbird is going to be special. These guys are putting in the work for a great cause. 💕

30/08/2025

MEET RED PRAWN 🎸
�Say hello to the students rocking our charity gig! Red Prawn is a group of friends from Nexus International School, supporting HSS through their music.

The band began when Alex (bass) and Tomas (vocals) met Grace (drums) in a high school play. As a rock band, they desperately needed a guitarist and soon found Ari in the unlikeliest of places - a jazz ensemble! And so Red Prawn was born.

Since then, they’ve come a long way. Their proudest moment? Flying overseas to perform at the Asia Battle of the Bands: “It was definitely our favourite gig and a massive achievement for us musically. Being flown out to play in another country was an unforgettable experience.”

With influences ranging from Red Hot Chili Peppers to Foo Fighters and Oasis, the band knows how to pick a crowd-pleaser: “We’ve packed the setlist with everyone’s old favourites so people can sing and dance along!”

But what makes this gig special is the cause. Not all of them had heard about haemophilia before, but preparing for the show opened their eyes. “It really brings things to a whole new level for us as a band - turning what we used to do for fun into something that makes a difference for something meaningful. We’re really excited to play everyone's favourite jams while doing our part to also raise awareness about haemophilia.”

⚡ Expect energy, big riffs, and even the occasional flying drumstick from Grace’s powerhouse drumming - you have been warned! 😄

🎶 Catch Red Prawn live and support HSS on Sunday 21st September at The Blackbird, 3–5pm! ⏰

04/06/2025

🎬 What a fantastic afternoon at the movies! 🎬

A huge thank you to everyone who attended our charity film screening of Mission: Impossible – The Final Reckoning on 25 May 2025 at Shaw Theatres PLQ!

A huge thank you to everyone who came down for our charity film screening of Mission: Impossible – The Final Reckoning on 25 May 2025 at Shaw Theatres PLQ!

We’re thrilled to share that together, we raised over $45,000 to support the Haemophilia Society of Singapore. 🙌 Your generous donations will go a long way in helping to defray medical costs for our members and fund vital community programs. ❤️

Every ticket, every popcorn combo, every dollar counts — and we’re so grateful for your support.

Special thanks to Leong Chin and Alex for planning and coordinating the event so smoothly behind the scenes. And thank you to all of YOU who showed up to support a meaningful cause (and enjoy some movie magic), and for making this year’s fundraiser such a success! 💪🍿

06/05/2025

Dear All,

The Haemophilia Society of Singapore (HSS) is holding a fund-raiser screening of Mission: Impossible: The Final Reckoning on 25 May 2025.

The HSS helps provide essential financial aid, medical assistance, and community programs for individuals with haemophilia and their caregivers.

We are seeking donations of $50, $100 or $200 per movie ticket. Donors will receive a movie ticket and a popcorn combo as a gesture of appreciation, plus a tax-exempt receipt.

As we are a fully volunteer-run organisation, all proceeds from the charity film screening go to defraying the medical costs of HSS members.

How to Donate & Secure Your Tickets:
1. PayNow – UEN: S85SS0047A (Haemophilia Society of
Singapore)
2. Bank Transfer – Account details available upon request
3. Giving.sg Portal –
https://www.giving.sg/donate/campaign/film-screening-2025

To confirm your donation & ticket reservation:
Before making a donation, please inquire for the availability of tickets and we will revert to you on the same day or as soon as possible.

● After making a donation, please email, SMS or WhatsApp your donation details and transaction reference to one of the contacts below.
● The last day for ticket reservation is on 22 May 2025.
Ticket Reservations & Enquiries: (WhatsApp Only) Ying Wei: 97376848 | Leong Chin: 97768473 | Alex: 96997328 Email:haemophilia.sg@gmail.com

Ticket Allocation & Collection:
Seats are allocated on a first come, first served basis based on the donation category.

Ticket collection will occur on the event day at Shaw Theatres PLQ.

Your donations will help persons with haemophilia to live a normal life. Thank you for your generosity and support!

🎬Movie: Mission: Impossible – The Final Reckoning
📅Date: 25th May 2025
​​⏳ ​Time: To be confirmed (est. start times: 3pm to 6pm)
📍Location: Shaw Theatres Paya Lebar Quarter, 10 Paya Lebar Road, PLQ Mall, #05-02, Singapore 409057

https://youtu.be/fsQgc9pCyDU?si=kAKM03mEHJh-Vf2yt

Every choice, every mission, has all led to this. Impossible – The Final Reckoning. May 23, 2025.Connect with TikTok: https://www...