Vulvar Cancer Awareness Forum

10/11/2025

Not sure how to do it? 🤔

Here's a detailed description. ⬇️

📌 Stand, squat, sit over the top of a handheld mirror, or lay on a bed with your legs spread, making sure you can see your ge****ls clearly.

📌 Check the area where your p***c hair grows. Look for any moles, spots, lesions, bumps, lumps, rashes, white raised lesions, red spots, pimples, or wart-like growths.

📌 Next, find your cl****is. Look for any growths, bumps, or discoloration.

📌 Check your l***a majora (the outer lips) and feel for any bumps. Also, visually look for any moles, rashes, growths, lesions, white raised lesions, red spots or pimples or wart-like growths, open sores, lumps, etc

📌 Repeat this check with your l***a minora (the inner lips).

📌 Finally, look at your perineum. The perineum is the space located between the va**na and the a**s. Again, look for rashes, bumps, growths, and lesions.

🚨 If you see something, say something! Report anything suspicious or abnormal to your doctor. Even if it seems to be small it's, important that you do. V***ar cancer is very treatable if detected early.

There are no screenings for V***ar Cancer. The ONLY 100% sure way to rule out or diagnose this cancer is a biopsy.

Please share this post with others to encourage them to check their v***as.

Early detection is key to survival!

***arCancer ***alCancer ***arCancerAwareness ***a

10/09/2025

A biopsy is currently the only method to detect or rule out v***ar cancer with 100% accuracy and certainty.

A biopsy involves extracting a sample of cells or tissues for examination to determine the presence or extent of a disease.

👎🏼 Common Misconception:

Many people mistakenly believe that a Pap smear can detect v***ar cancer. This is FALSE.

✨️ Pap Smear: Detects abnormal cells on the cervix, located inside the va**nal canal.

✨️ V***ar Biopsy: Detects abnormal cells on the v***a, the external part.

💡 Why It's Crucial:

If there is any suspicion of v***ar cancer, either from you or your doctor, a biopsy should be performed. Don't be afraid to ask for one and advocate for yourself—it could save your life!

💭 REFLECT & ACT:

✨️ Have you ever discussed v***ar cancer with your healthcare provider?

✨️ Do you know how to perform a self-exam and what to look for?

✨️ How can you help spread awareness in your community?

Get Involved:

💜 Share this information with your friends and loved ones. Knowledge is power!

💪🏽 Together, we can make a difference. Let's break the silence and stigma around v***ar cancer.

***arCancerAwareness ***arCancer ***alCancer ***aCancer ***a

10/07/2025

🛑 𝗪𝗵𝗲𝗻 “𝗪𝗮𝘁𝗰𝗵 𝗮𝗻𝗱 𝗪𝗮𝗶𝘁” 𝗜𝘀𝗻’𝘁 𝗦𝗮𝗳𝗲: 𝗛𝗼𝘄 𝘁𝗼 𝗔𝗱𝘃𝗼𝗰𝗮𝘁𝗲 𝗳𝗼𝗿 𝗮 𝗩𝘂𝗹𝘃𝗮𝗿 𝗕𝗶𝗼𝗽𝘀𝘆 🛑

Too many women with symptoms of v***ar cancer are being dismissed, misdiagnosed, or told to “monitor” and "watch and wait" without receiving the one test that can actually diagnose or rule out cancer: a biopsy.

💡 𝗛𝗲𝗿𝗲’𝘀 𝗵𝗼𝘄 𝘁𝗼 𝗮𝗱𝘃𝗼𝗰𝗮𝘁𝗲 𝗳𝗼𝗿 𝘆𝗼𝘂𝗿𝘀𝗲𝗹𝗳 𝘄𝗵𝗲𝗻 𝘆𝗼𝘂 𝗸𝗻𝗼𝘄 𝘀𝗼𝗺𝗲𝘁𝗵𝗶𝗻𝗴 𝗶𝘀𝗻’𝘁 𝗿𝗶𝗴𝗵𝘁:

1️⃣ 𝘼𝙨𝙠 𝘿𝙞𝙧𝙚𝙘𝙩𝙡𝙮 𝙛𝙤𝙧 𝙖 𝘽𝙞𝙤𝙥𝙨𝙮: If you have a lesion, discoloration, or persistent symptoms, say clearly: “I would like a biopsy to rule out v***ar cancer.” You do not need to wait for your doctor to suggest it. You have the right to request it.

2️⃣ 𝙄𝙛 𝙩𝙝𝙚 𝘿𝙤𝙘𝙩𝙤𝙧 𝙍𝙚𝙛𝙪𝙨𝙚𝙨: Ask for That Refusal to Be Documented. Say: “Please document in my chart that you are declining to order a biopsy.” This simple request often shifts the dynamic. Many providers hesitate to put a refusal in writing—because it creates accountability. In many cases, they’ll reconsider and order the biopsy.

3️⃣ 𝙄𝙛 𝙏𝙝𝙚𝙮 𝙎𝙩𝙞𝙡𝙡 𝙍𝙚𝙛𝙪𝙨𝙚: Find a New Doctor. You deserve a provider who listens, investigates, and respects your concerns. A documented refusal is a red flag. Take your records and seek care elsewhere. Your health is worth the extra step.

4️⃣ 𝘽𝙧𝙞𝙣𝙜 𝙖 𝙎𝙪𝙥𝙥𝙤𝙧𝙩 𝙋𝙚𝙧𝙨𝙤𝙣 𝙤𝙧 𝘼𝙙𝙫𝙤𝙘𝙖𝙩𝙚: Sometimes having someone with you—especially someone who can calmly reinforce your request—can help shift the tone of the appointment and ensure you’re heard.

5️⃣ 𝙏𝙧𝙪𝙨𝙩 𝙔𝙤𝙪𝙧 𝘽𝙤𝙙𝙮: Trust Your Voice. You are not “being dramatic.” You are being vigilant. V***ar cancer is rare, but it does happen—and early detection saves lives. A biopsy is quick, simple, and definitive. You are worth that clarity.

💬 Have you ever had to push for a biopsy—or been denied one? Your story could help someone else find the courage to speak up.

💪🏿 Let’s break the silence and empower each other to demand the care we deserve.

***arCancerAwareness ***alCancer ***arCancer

10/07/2025

10/04/2025

Did you know? 🤔

If you have a v***a, you could be at risk. That’s why it’s so important to learn the signs and symptoms of this cancer.

We strongly encourage monthly v***ar self-exams. Know your normal. If you notice anything unusual such as itching, pain, changes in skin texture or color, please speak up and see a doctor right away.

🛑 Early detection saves lives. V***ar Cancer is often highly treatable when caught early.

Let’s break the silence. Let’s raise awareness. Because every v***a deserves vigilant care.

💗 Like | 💬 Comment | 🔁 Share

***arCancerAwareness ***as ***a ***arDiseases ***arCancer

10/03/2025

💡𝗨𝗻𝗱𝗲𝗿𝘀𝘁𝗮𝗻𝗱𝗶𝗻𝗴 𝘁𝗵𝗲 𝗙𝗶𝘃𝗲-𝗬𝗲𝗮𝗿 𝗦𝘂𝗿𝘃𝗶𝘃𝗮𝗹 𝗥𝗮𝘁𝗲: 𝗪𝗵𝗮𝘁 𝗜𝘁 𝗥𝗲𝗮𝗹𝗹𝘆 𝗠𝗲𝗮𝗻𝘀

There’s a common and deeply concerning misunderstanding around the term “five-year survival rate.” Too often, v***ar cancer patients hear this statistic and assume it means they will die within five years of diagnosis. That’s not what it means at all.

The “five-year survival rate” is a research term—used by doctors and scientists to compare outcomes across groups of patients. It’s a benchmark, not a prediction. Most importantly, it does not mean you’ll only live five years after being diagnosed.

Instead, it refers to the percentage of people in clinical studies who were still alive five years after their diagnosis. It’s about those who lived—not those who didn’t.

🧠 𝗛𝗲𝗿𝗲’𝘀 𝘁𝗵𝗲 𝗸𝗲𝘆 𝘁𝗮𝗸𝗲𝗮𝘄𝗮𝘆:

The five-year survival rate reflects how many patients lived at least five years after diagnosis. It does not mean others died within that timeframe. This misunderstanding can cause unnecessary fear and despair.

📊 𝗩𝘂𝗹𝘃𝗮𝗿 𝗖𝗮𝗻𝗰𝗲𝗿 𝗦𝘂𝗿𝘃𝗶𝘃𝗮𝗹 𝗥𝗮𝘁𝗲𝘀 (𝟱-𝗬𝗲𝗮𝗿 𝗕𝗲𝗻𝗰𝗵𝗺𝗮𝗿𝗸𝘀):

• Early-stage v***ar cancer: 99% survive past five years

• Localized (confined to the v***a): 87% survive past five years

• All stages combined: 71% survive past five years

• Spread to nearby tissues or lymph nodes: 49% survive past five years

• Distant metastasis (spread to other organs): 22% survive past five years

📝 𝗜𝗺𝗽𝗼𝗿𝘁𝗮𝗻𝘁 𝗡𝗼𝘁𝗲𝘀:

• These numbers are based on large-scale studies and averages. They do not predict individual outcomes.

• Many personal factors—age, overall health, treatment response, and more—play a role in survival.

• Some deaths within five years may be unrelated to cancer (e.g., heart attacks, strokes, accidents).

💬 𝗕𝗼𝘁𝘁𝗼𝗺 𝗹𝗶𝗻𝗲:

The five-year survival rate is a statistical tool—not a countdown. It’s meant to inform, not frighten. You are not a number. You are a whole person with your own journey, and statistics cannot define your future.

We hope this helps clarify what the five-year survival rate truly means—and reminds you that it’s not a death sentence.

***arCancer ***arCancerAwareness ***alCancer

10/01/2025

Question of the day:
What areas would you love to see us address or bring more clarity to?

10/01/2025

It's that time of the month again!

Not sure how to do it? 🤔

Here's a detailed description. ⬇️

📌 Stand, squat, sit over the top of a handheld mirror, or lay on a bed with your legs spread, making sure you can see your ge****ls clearly.

📌 Check the area where your p***c hair grows. Look for any moles, spots, lesions, bumps, lumps, rashes, white raised lesions, red spots, pimples, or wart-like growths.

📌 Next, find your cl****is. Look for any growths, bumps, or discoloration.

📌 Check your l***a majora (the outer lips) and feel for any bumps. Also, visually look for any moles, rashes, growths, lesions, white raised lesions, red spots or pimples or wart-like growths, open sores, lumps, etc

📌 Repeat this check with your l***a minora (the inner lips).

📌 Finally, look at your perineum. The perineum is the space located between the va**na and the a**s. Again, look for rashes, bumps, growths, and lesions.

🚨 If you see something, say something! Report anything suspicious or abnormal to your doctor. Even if it seems to be small it's, important that you do. V***ar cancer is very treatable if detected early.

There are no screenings for V***ar Cancer. The ONLY 100% sure way to rule out or diagnose this cancer is a biopsy.

Please share this post with others to encourage them to check their v***as.

Early detection is key to survival!

***arCancer ***alCancer ***aSelfExam ***arCancerAwareness ***a ***a ***a

10/01/2025

We appreciate this woman's courage to speak up and make a difference. 💪🏼

💛 Yohanna was diagnosed with v***ar cancer at age 36: “Having been diagnosed with v***ar cancer was one of the scariest things ever. However, cancer doesn't own me nor define me, and it certainly won't dictate the way I live my life. If you have been diagnosed with one of the 5 gynecological cancers, refuse to get lost in the disease. The power belongs to you, not cancer!” What a powerful message during 💛 Please join me in thanking this wonderful woman for sharing her story and bring awareness about v***ar cancer. Yohanna was my inspiration as I pushed through my PhD application for gyn cancers a few months back. I’m so grateful to her and to all women and men who are part of the Girls Rocking Cancer community. 🙏 You never know the impact that your story can have for prevention, early detection and support. If you’d like to share your story or a message about your cancer journey, please DM or email me.
***arcancer

09/30/2025

✨️ We’re growing, and we’d love for you to grow with us! ✨️

If you’ve found hope, strength, or solidarity here on Facebook, come join us on Instagram too! 💜

We’re sharing:

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Instagram is an additional space to connect visually, and reach even more hearts. Your support means the world—and your presence helps amplify our mission.

📲 Follow us on Instagram: ***arcancerawareness

Let’s keep building this beautiful, brave community. 💪🏼

***arCancer ***arCancerAwareness

https://www.instagram.com/v***arcancerawareness?utm_source=qr&igsh=MXRmNWFwNGsxZWozcQ==

09/30/2025

Did you know? 🤔

❌ A Pap smear doesn't detect v***ar cancer.

🔍 Early detection can make all the difference!

✨️ A biopsy is the only way to diagnose v***ar cancer

🦠 V***ar Cancer is often misdiagnosed as a yeast infection

🗓 V***ar Cancer often goes undiagnosed for years

📋 No screenings exist for it, so regular self-exams are crucial.

🌸 V***ar cancer is more common than you might think—it's often just diagnosed late.

Share to spread awareness! 💪

***arCancer ***alCancer ***aCancer ***a # # ***aKarzinom

09/28/2025

Many people are unsure about the best way to care for their v***a. This uncertainty largely stems from social stigma, which has long tried to make conversations about ge***al health a taboo topic.

But here at VCAF, we proudly embrace our role as stigma-busting rebels! 😅

Here are some essential tips for proper v***ar care:

✨️ Avoid harsh chemicals, fragrances, and soaps. These can irritate the v***a's sensitive skin and potentially lead to a range of skin issues.

✨️ Opt for breathable underwear. While cotton may not win any fashion awards, it's the healthiest choice. Steer clear of irritating, overly dyed fabrics that can cause friction and skin irritation.

✨️ Say no to feminine deodorants and other scented products. Your v***a isn’t meant to smell like a bouquet of flowers—embrace its natural state! 😅

✨️ Stick to gentle, unscented cleansers. The v***a’s delicate skin doesn’t need anything more than mild, fragrance-free soap.

✨️ Do a monthly v***ar self-exam. Look for any unusual changes like white or red raised lesions, lumps, bumps, pimples, ulcers, wart-like or cauliflower-like growths, or moles.

If you spot anything concerning during your self-exam, make an appointment with your GP or gynecologist as soon as possible.

Remember, v***ar care is self-care! 🥰

***aCare ***arHealth ***arcancer