26/10/2019
Message from Julia & John.
Not really wanting to post this on public media, bit it's all I've got
It has come to our attention that there are issues with the givealittle page that was set up by kind friends of ours who seen our great need.
We totally acknowledge that their is always people out there worse off than ourselves, which we have never doubted or even challenged. In fact we were embarrassed when the page was first set up. But had to make the decision we needed to for our family.
Kind friends set up this page to help both Lennox & myself through the continuing struggles, pain and hell, we are still going through for me 12 years on.
If you have something to say or ask please call me or PM me directly instead of involving my family or talking behind our backs and causing more stress by starting rumours. I hate to have to say this, but please think before you say very hurtful things.
For those of you who dont know the last 12 years have been very rough on me health and surgery wise, very life changing, and since my cervical spinal surgery, I have had constant issues with dizziness, nausea, pain, numbness in my arms, neck, back etc. I'm working hard on a rehab programme as I want to get back to work, be able to be independent again by being allowed to drive and look after Lennox the most precious thing in my life. These are the daily struggles I face. I want to have fun with my family. I work with many medical professionals at extreme cost to us, which is hard due to loss of income and increased costs for childcare, the days I used to live being able to spend with Lennox.
I'd hopefully like to reconnect with friends lost since I have been stuck at home when I can too. But know I'm here for you to contact or visit me.
For those of you who dont know our precious boy is legally blind, he suffers from many eye conditions Albinism, Horizontal Nystagmus, Optic Nerve Hyperplasia, and Hyperopia, along with some developmental delay, sensory issues and eating issues, failure to thrive.
He handles his situation amazingly for the fact not alot of light comes through his Optic nerves.
We are very proud of him but also want what's right for him. Sadly the equipment he needs is expensive, some funded some not, so we are in the position where we need to try to fundraise to get it to make life easier.
Due to ever evolving situations and me not being able to control or look after Lennox alone with my disabilities and constant dizziness and strength, life is hard. This tugs at my heartstrings daily.
I thank all of you who have donated to our cause, set up fundraisers and raffles, I cannot thank you enough and words cant describe how lucky we are that you are in our lives. Thank you from the bottom of our hearts ❤
I'd also like to thank those, who I met post surgery, that have given me so much help and support that I can never thank you enough, to say we would be screwed without you is an understatement and I love that you took us into your group & hearts unequivocally.
Strangely aside from a special few, the help has come from new people not the people I thought it would, but I appreciate life is busy too for you all.
To those of you who think less of us due to this situation and page, I am sorry, you feel this way, we are not trying to beg, or pressure anyone or upset anybody, especially family.
As said before if you have a problem or question please call me or PM me, I can deal with them individually when time allows, but right now both my son and I need support more than backstabbing and gossip coming 2nd hand. I'm just sad its come to this when kind friends were trying to help us out by setting this page up.
Anyway thank you to those kind people for your help. I'm sorry these issues have tainted your amazing gesture.
Thank you
Julia, John and Lennox.
